2016 Highlights for FCF

FCF produces a report card each year highlighting its progress in the fight to find a cure for fibrolamellar. To quote FCF founder Tucker Davis, “I know there is a cure out there and I hope we find it in my lifetime, but if we don’t, you have to find it”. FCF’s 2016 accomplishments are listed below.

Mission: Research

  • Invested nearly $6MM in fibrolamellar research since 2009
  • Launched a new grant application process modeled after the NIH
  • Granted funding to ten distinquished research institutions in 2016:  U of California/San Francisco, Duke, Harvard, Mayo Clinic, U of North Carolina/Chapel Hill, Rockefeller, Stanford, U of Vermont, U of Washington, and U of Wisconsin
  • Began a multiyear partnership with the Cancer Research Institute researching immunotherapy as it relates to fibrolamellar
  • Established a biobank program storing patient tissue at Store-My-Tumor for research and patient use

Mission: Awareness and Education

  • Continued expansion of cancer affiliations with the White House Moonshot Rare Cancer Committee, American Society of Clinical Oncologists, GI Cancers Alliance and the National Organization of Rare Diseases

Mission: Patient and Community

  • In conjunction with the Davis family, FCF hosted the fifth annual patient and family gathering in Stowe, VT
  • Relaunched FCF’s website as mobile friendly with enhanced navigation and data
  • For the second year, selected by the Dept of Defense to have FCF patient advocates participate in the DOD liver cancer grant review process.