Since Tucker Davis founded FCF in 2009, nearly $6 million has been raised for fibrolamellar research. A significant portion of that money has been raised through various events. There are also events held which are not fundraising as much as community building. FCF has featured various events on the home page of its website. Check out previously featured events and news items.
Stone Point Capital Golf Outing – Since 2009 Stone Point Capital’s annual charity golf tournament has dedicated the proceeds to FCF. This is the largest source of funding at the Foundation.
The Patient and Family gathering is a key event on the Foundation calendar. For the last three years this has been held in Stowe, VT at no cost to patients and families. While not a fundraising event it is a time for bonding and exchanging advice and information. It fulfills the Foundation’s mission to connect and support the fibrolamellar community of patients and their families.
October is Fibrolamellar Coffee Month
Gail Trecosta, whose son Matthew (1999-2014) was a fibro patient, organizes coffees each year around the country, and even in a few foreign countries to benefit FCF. There have been as many as 30 coffee socials in one year taking many different forms from art parties to in home coffees to mini-fundraisers at restaurants. Since its inception in 2013 these coffee events have raised over $75,000 for the Foundation. Contact Gail if you are interested in hosting a party next October.
NYC Marathon – For the last six years FCF has had runners in the New York City Marathon.They run with Fred’s Team from Memorial Sloan-Kettering (MSK). Fred Lebow was the co-founder of the NYC Marathon in 1970. In 1990 Fred was diagnosed with brain cancer. He was treated at MSK and jogged down the hospital hallways during his recovery. He ran the marathon for the last time in 1992 when his cancer was in remission finishing in 5 hours and 32 minutes. Fred died in 1994. Although part of Fred’s Team, all funds raised by FCF runners go directly to the Fibrolamellar Research Fund set up at MSK and are used only for fibrolamellar research.
Cycle for Survival happens each year in locations around the U.S.A.: Boston; Chicago; Connecticut; Long Island; Los Angeles; Miami; New York City; San Francisco; New Jersey, and; Washington, D.C. If you live anywhere near one of these places and want to raise money for FCF, getting exercise at the same time check out Cycle for Survival and then contact Lynn to let her know your plans. Cycle for Survival is a Memorial Sloan-Kettering Cancer Center fundraiser for rare cancers but riders can specify the specific research they want funded through the event.
This amazing sky diving event, held in coordination with the US Army Golden Knights, honors Zach’s life has been held since 2012 with almost $70,000 raised in total.
Fibrolamellar Calendar – For the past three years there has been a calendar featuring fibrolamellar patients on their birthday months. The design, production and sales have been coordinated by Gail Trecosta, parent of patient Matthew (1999-2014.) Each year approximately $4000 has been donated to FCF from sales of the calendar. Thank you Gail!
Cheers To Jay and Jump for Jay – The Alexander family has held events each year honoring their son Jay since his passing. Cheers To Jay was a fundraising event at a local bar. A Jumping for Jay skydiving event happened in 2012, and Jay’s sister ran in the NYC marathon. The total from these events is almost $51,000! Thank you Alexanders for all you do for FCF!
Memphis, TN – The Rhodes College men’s soccer team has, for the last two years, played benefit matches for the FCF in honor of Max Burdette. Burdette, the brother of player Paul Burdette, passed away in the fall of 2014 from fibrolamellar. The Rhodes team promoted the Benefit Match on campus and locally with the hope of raising awareness of fibrolamellar cancer and to raise money to promote research in the area. The team is pictured in the header photo above.
Wrestling Tournament to benefit FCF in Fayetteville, NC
Ongoing Fundraising Projects
Song written for FCF
“The Light Inside” was written for FCF by Josh Panda. The song is available on itunes. The song is featured on the Foundation’s video. Listen to it, love it, buy it and talk about it!The Light Inside (feat. Mike Gordon, Adam Zimmon, & Steve Hadeka) – Single by Joshua Panda – Preview and download The Light Inside – Single on iTunes. See ratings and read customer reviews.
AmazonSmile is a simple and automatic way for you to support FCF when you shop on Amazon, at no cost to you. smile.amazon.com has the same low prices, vast selection and convenient shopping experience as Amazon.com, with the added bonus that Amazon will donate a portion of the purchase price to your favorite charitable organization. Just choose FCF as your permanent charity of choice and donations will be automatic.
Autumn Smith, is a jewelry designer. Please check out her websites at:
http://designsbyautumn.etsy.com and http://www.etsy.com/shop/StampingCancerOut . Autumn donates 10% of all sales from the latter site and 10% in October (Liver Cancer Awareness Month) from her Desgins by Autumn shop
We All Have Our Challenges: Bits of Wisdom
This book was written by Lilya Bromberg who died at 22 of fibrolamellar. Part of the proceeds from sales of the book are donated to FCF. You can purchase the book here.
Ashley Summerlin Murphy, fibro patient and author of Daddy’s Briefcase sends part of the proceeds of her book to FCF.