FCF is excited to be working with Pattern.org to empower patients to direct their excess fibrolamellar cancer tissue samples to a research project at the Broad Institute of MIT and Harvard (www.broadinstitute.org), where they will be used to attempt to develop research models. This initiative is part of a larger effort to establish and genetically characterize cancer cell lines, which are cancer cells that keep dividing and growing over time, under certain conditions in a laboratory. In developing these cancer cell lines, the Broad Institute is trying to enable the scientific community to improve our understanding of cancer, including fibrolamellar.
FCF is engaging its patient community to directly donate tissue samples through Pattern.org which links to an electronic consent form where patients can learn more about the project, find contact information for the protocol team at the Broad Institute should they have questions, and provide consent if they wish to contribute. Should a patient decide to provide consent, Pattern.org arranges for excess tissue to be shipped directly to the Broad Institute.
In choosing to donate tissue, patients become partners in research, helping investigators like those at the Broad Institute to study cancer. If you or a patient you know has an upcoming surgery, you can visit Pattern.org to learn more about the project or you can contact Lynn Omallery at Lomalley@fibrofoundation.org.
More information about the Cancer Cell Line Project from the Broad Institute is available here, or email firstname.lastname@example.org.