A Parent’s Journey

Fibrolamellar (FLC) caregiver Tom Stockwell shares his journey with fibrolamellar with his son Robert. This three-part video series discusses the following:

  • Initial response to the fibrolamellar diagnosis
  • Creating a game plan to begin the fight against the disease
  • Important tips for fibrolamellar caregivers and patients.

When these videos were taken Tom Stockwell was patient navigator for FCF, and therefore is referenced as such. While no longer serving in that role for the Foundation, Tom remains a friend of FCF and willing to reach out to and help patients and families.

Each video can be viewed below.

Initial Response

Creating a plan

Key tips

Note: MJ Hennessey produced these informative interviews via Cure Connections (www.cureconnections.com, a leading oncology magazine) and Rare Disease Report (www.rarediseasereport.com). MJ Hennessey and FCF have formed a strategic alliance to create a video series.