In 2008, when Tucker Davis (first row) was diagnosed with fibrolamellar hepatocellular carcinoma (FLC), he founded the Fibrolamellar Cancer Foundation (FCF) with his good friends Alisha Sternenberger, Charles Beermann and Derek Gilchrist (pictured with Tucker.) It was their hope to find a cure for this often fatal disease. Because the incidence of FHC was so rare, little research had been conducted at that time. FCF has helped change that.
FCF’s mission and vision
The principal purpose of the Foundation is to encourage, drive and fund research that will substantially improve outcomes for fibrolamellar patients. We envision a world where all people with fibrolamellar carcinoma will be diagnosed early, treated effectively and hopefully cured.
Consequently, our mission is three-fold:
- Find a cure and effective treatment options for fibrolamellar
- Connect and support the fibrolamellar community
- Raise awareness of this disease.
Our values include:
- Collaboration: Working together with the community to advance treatment options
- Innovation: Seeking discoveries that accelerate curative therapies
- Compassion: Understanding and supporting our patients and caregivers in their journey
- Urgency: Working quickly, but thoughtfully, to deploy the Foundation’s resources in a way that can significantly advance diagnosis and therapy.
FCF’s 10 Year Report, published in October 2020, provides a detailed summary of the significant progress that has been made since the Foundation was incorporated in June 2009. The report outlines the key milestones achieved between 2009 and 2019, discusses the dramatic changes in the fibrolamellar scientific landscape that have occurred, and includes reflections from fighters and their families.
The official video of the Fibrolamellar Cancer Foundation, located below, provides a brief overview of the disease, outlines the history of the organization, and introduces some of the doctors working on fibrolamellar research.
FCF is an IRS approved 501 (c) (3) tax deductible public charity. 100% of net donations go towards research. FCF’s overhead and administrative costs are paid by the Charles A. and Marna Davis Foundation and Stone Point Capital.
Marna and Chuck Davis’ extensive work with FCF was covered in the Wall Street Journal, in a feature called “Donor of the Day”. The article can be viewed or downloaded below.