Category: Media timeline

Fibrolamellar Cancer Foundation’s Rare Cancer Day press release.

Tells the story of the Foundation, the disease and the doctors working on research.

Ghassan Abou-Alfa, M.D., a medical oncologist at Memorial Sloan Kettering Cancer Center, discusses the basics of clinical trials, and why participation in them is important

At the National Organization of Rare Diseases’ Summit (NORD Summit),  John Hopper, president of FCF discusses what is next for the rare cancer community. He explains how the NORD meeting serves as a meeting place for providers, patients, and pharmaceutical companies to catch-up on the latest advances being made in the..Read More

In this CURE Connections® program, leaders of the GI Cancers Alliance, including John Hopper, Executive Director of FCF are interviewed

Check out this story about a New Year’s wish to be in New York City

Teen Makes Genetic Discovery of Own Rare Cancer:  News report on scientific discovery led by 18 year old patient, Elana Simon.  The report includes a video from an NBC Nightly News segment with Anne Curry interviewing Elana

Features two patients researching their own disease and focuses on the need for fibrolamellar tissue for research.

Josh Panda – The singer/songwriter who wrote and dedicated The Light Inside to FCF speaks about his need to make a difference. This was filmed in October 2013, just prior to a fundraiser for FCF at the Skinny Pancake restaurant in Josh’s hometown Burlington, VT. The Light Inside is the theme music on..Read More