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UID:26@fibrofoundation.org
DTSTART;TZID=America/New_York:20210421T140000
DTEND;TZID=America/New_York:20210421T150000
DTSTAMP:20220507T131625Z
URL:https://fibrofoundation.org/events/transitioning-to-adult-care/
SUMMARY:Transitioning to Adult Care
DESCRIPTION:\n\n\n\n\n\n\n\nAs rare disease patients approach adulthood\, t
 hey face the transition from parent-supervised pediatric care to more inde
 pendent adult models whereby they take ownership of their care. This chang
 e can seem daunting for patients and parents\, especially when dealing wit
 h rare disorders that involve multiple specialists that may be part of a c
 are team. \n\nIn this webinar sponsored by the National Organization for 
 Rare Disorders (NORD)\, attendees will learn how to plan for this change a
 nd will hear from a mother and son\, who will share their experiences tran
 sitioning from pediatric to adult care as a family living with Congenital 
 Bilateral Perisylvian Syndrome (CBPS).\n\n\n\n\n\n\n\n\n\n\n\n\nThis webin
 ar is intended for patients\, caregivers\, medical professionals\, student
 s and the general public.\n\nFor more information or to register\, click h
 ere.\n\n\n\n\n\n
CATEGORIES:partner-sponsored event
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DTSTART:20210314T030000
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