Since Tucker Davis founded FCF in 2009, nearly $6 million has been raised for fibrolamellar research. A significant portion of that money has been raised through various events. There are also events held which are not fundraising as much as community building. FCF has featured various events on the home page of its website. Check out previously featured events and news items.
Stone Point Capital Golf Outing – Since 2009 Stone Point Capital’s annual charity golf tournament has dedicated the proceeds to FCF. This is the largest source of funding at the Foundation.
The Patient and Family Gathering is a key event on the Foundation calendar. For the last five years this has been held in Stowe, VT at no cost to patients and families. It is a time for bonding and exchanging advice and information. It fulfills the Foundation’s mission to connect and support the fibrolamellar community of patients and their families.
NYC Marathon – For many of the last seven years FCF has had runners in the New York City Marathon.They run with Fred’s Team from Memorial Sloan-Kettering (MSK). Fred Lebow was the co-founder of the NYC Marathon in 1970. In 1990 Fred was diagnosed with brain cancer. He was treated at MSK and jogged down the hospital hallways during his recovery. He ran the marathon for the last time in 1992 when his cancer was in remission finishing in 5 hours and 32 minutes. Fred died in 1994. Although part of Fred’s Team, all funds raised by FCF runners go directly to the Fibrolamellar Research Fund set up at MSK and are used only for fibrolamellar research.
Cycle for Survival happens each year in locations around the U.S.A.: Boston; Chicago; Connecticut; Long Island; Los Angeles; Miami;New York City; San Francisco; New Jersey, and; Washington, D.C. If you live anywhere near one of these places and want to raise money for FCF, getting exercise at the same time check out Cycle for Survival and then contact Lynn to let her know your plans. Cycle for Survival is a Memorial Sloan-Kettering Cancer Center fundraiser for rare cancers but riders can specify the specific research they want funded through the event.
This amazing sky diving event, heldin coordination with the US Army Golden Knights, honors Zach’s life has been held since 2012 with almost $70,000 raised in total.
Fibrolamellar Calendar – For the past four years there has been a calendar featuring fibrolamellar patients on their birthday months. The design, production and sales have been coordinated by Gail Trecosta, parent of patient Matthew (1999-2014.) The Foundation receives a portion of the sales from this calendar each year.
Cheers To Jay and Jump for Jay – The Alexander family has held events each year honoring their son Jay since his passing. Cheers To Jay was a fundraising event at a local bar. A Jumping for Jay skydiving event happens almost annually, and Jay’s sister ran in the NYC marathon. The total from these events is well over $50,000! Thank you Alexanders for all you do for FCF!
Ongoing Fundraising Projects
Song written for FCF
“The Light Inside” was written for FCF by Josh Panda. The song is available on itunes. The song is featured on the Foundation’s video. Listen to it, love it, buy it and talk about it! The Light Inside (feat. Mike Gordon, Adam Zimmon, & Steve Hadeka) – Single by Joshua Panda
AmazonSmile is a simple and automatic way for you to support FCF when you shop on Amazon, at no cost to you. smile.amazon.com has the same low prices, vastselection and convenient shopping experience as Amazon.com, with the added bonus that Amazon will donate a portion of the purchase price to your favorite charitable organization. Just choose FCF as your permanent charity of choice and donations will be automatic.
Autumn Smith, is a jewelry designer. Please check out her websites at:
http://designsbyautumn.etsy.com and http://www.etsy.com/shop/StampingCancerOut . Autumn donates 10% of all sales from the latter site and 10% in October (Liver Cancer Awareness Month) from her Desgins by Autumn shop
We All Have Our Challenges: Bits of Wisdom
This book was written by Lilya Bromberg who died at 22 of fibrolamellar. Part of the proceeds from sales of the book are donated to FCF. You can purchase the book here.
Ashley Summerlin Murphy, fibro patient and author of Daddy’s Briefcase sends part of the proceeds of her book to FCF.