Donations are Critical and Easy to Do
The availability of fibrolamellar cancer cells for current and future research is crucial for finding a cure and treatment for FLC. One of the first questions asked by researchers before they are willing to delve into the fibrolamellar world…”Are there biospecimens available?” In addition, any patient undergoing surgery, fluid drains, biopsy or other procedures where cancer cells are being removed should have that biospecimen saved because genetic testing, and treatment plans tailored to a patient’s cancer profile, are becoming an important part of cancer therapy. Preserving a patients biospecimens for personal use or research purposes is best accomplished at the time of a surgery or a procedure.
Currently FCF offers three simple options for patients to donate to our biobank campaign. The Foundation also has a biobank consultant available to help you through the process (see below for contact information).
- Direct to Research (DTR) FCF has many active research initiatives in need of biospecimens. The FCF biobank consultant will help you direct your donation to the institutions that best match the need for your biospecimen.
- Broad Institute (Harvard/ MIT) via Pattern.org: Patients can donate tissue to a specific rare cancer cell line pilot program sponsored by pattern.org and the Broad Institute, focused on creating fibrolamellar cell lines for genomic research available to all qualified research institutions. Biospecimens donated here is for research, not for patient use. For more information, contact pattern.org
- Store My Tumor (SMT) The Foundation works with a high quality independent biobank – StoreMyTumor – that helps store biospecimens for future research and for patient use. Patients interested in banking tissue with StoreMyTumor should discuss this with FCF biobank consultant.
The Foundation is happy to connect you with our biobank consultant, Tom Stockwell, who can answer questions and guide you on how to make your donation as easy as possible. Tom’s contact information follows:
[email protected] or 760-333-2699