Media Coverage

Media timeline

2021
Mar 19

Greenwich Sentinel

This article, based on a recent interview with Marna Davis, outlines the history of the Fibrolamellar Cancer Foundation. Click here to read the story.
Feb 27

Greenwich Sentinel

Fibro fighter Mark Carles shares his story and talks about the impact of the pandemic on his treatment at a February 26, 2021 Rare Disease Day event. Details are in this article by the Greenwich Sentinel.

2018
Nov 19

GI Cancers Alliance Video

Ghassan Abou-Alfa, M.D., a medical oncologist at Memorial Sloan Kettering Cancer Center, discusses the basics of clinical trials, and why participation in them is important

Oct 16

NORD Summit

At the National Organization of Rare Diseases’ Summit (NORD Summit),  John Hopper, president of FCF discusses what is next for the rare cancer community. He explains how the NORD meeting serves as a meeting place for providers, patients, and pharmaceutical companies to catch-up on the latest advances being made in the rare disease space, advances that could not have been made without communication and collaboration across the board.

Sep 09

AP News

Doctors explore lifting barriers to living organ donation: Fibrolamellar patient receives partial liver transplant from a friend. Both patient and friend are doing well.

Apr 08

Peoria Times

A young boy is currently cancer free thanks to a liver transplant from his Dad. An appreciative grandmother planned a wonderful cowboy themed event which happened in the Phoenix area April 2019 and raised funds for FCF. Details are in this news coverage from Peoria Times.

2017
Feb 10

Cure Connections Video

In this CURE Connections® program, leaders of the GI Cancers Alliance, including John Hopper, Executive Director of FCF are interviewed

2016
Dec 31

Make A Wish Foundation

Check out this story about a New Year’s wish to be in New York City

2014
Apr 16

NBCNews.com

Teen Makes Genetic Discovery of Own Rare Cancer:  News report on scientific discovery led by 18 year old patient, Elana Simon.  The report includes a video from an NBC Nightly News segment with Anne Curry interviewing Elana

Feb 20

Science Magazine

Article on genetic mutation in fibrolamellar tissue

This prestigious journal printed an article on significant research findings made in the Tucker Davis Research Facility at Rockefeller University headed by Dr. Sandy Simon. The research is that highlighted in the NBC video posted above. The article itself is not currently available on line.

Feb 14

New Yorker

Open Sourcing a Treatment for Cancer – February 2014
This article reports on the Science Magazine research article and Elana Simon’s role in the research

Feb 14

Wall Street Journal

Teen Helped Research Her Own Disease – Rare Cancer May Be Linked to Gene Mutation
This article reported on a scientific breakthrough in fibrolamellar research made at the Tucker Davis Research Facility at Rockefeller University.  Dr. Sandy Simon is head of the lab and his daughter Elana, a fibrolamellar patient, conducted much of the research. The article is not currently available on line.

2013
Oct 10

Josh Panda – “The Light Inside”

Josh Panda – The singer/songwriter who wrote and dedicated The Light Inside to FCF speaks about his need to make a difference. This was filmed in October 2013, just prior to a fundraiser for FCF at the Skinny Pancake restaurant in Josh’s hometown Burlington, VT. The Light Inside is the theme music on the Official FCF video listed below and it is available on Apple Music – search under Josh Panda.

Aug 01

Fibrolamellar Liver Cancer Research Video

Features two patients researching their own disease and focuses on the need for fibrolamellar tissue for research.

Apr 12

Wall Street Journal 


Tucker Davis’ parents were interviewed and their work with FCF was covered in this feature which appears regularly in the Journal, called Donor of the Day. Click here to download the article.

2012
May 24

Fibrolamellar Cancer Foundation Official Video

Tells the story of the Foundation, the disease and the doctors working on research.