Broad Institute of MIT and Harvard

Creating a Fibrolamellar Cancer Dependency Map2020 – 2022 Principal Investigator: Jesse Boehm, PhD, Institute Scientist, Director of the Broad Cancer Model Development Center This resource project is part of the Broad Institute’s Rare Cancer Dependency Map Initiative. It aims to create cell culture research models of FLC and utilize them to determine both a comprehensive …

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Massachusetts General Hospital

Massachusetts General Hospital (Harvard University) Fibrolamellar Carcinoma Model Development and Analysis2019 – 2021 Principal Investigator: Nabeel Bardeesy, PhD, Associate Professor, Massachusetts General Hospital, Harvard University This is a resource development project for the fibrolamellar cancer research community. The primary goal is to derive a new series of transplantable human FLC tumors grown in immune-deficient mice …

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Cancer Research Institute

FCF has partnered with the prestigious Cancer Research Institute (“CRI”) to specifically focus on the role immunotherapy may have in creating curative therapies for fibrolamellar. CRI has been promoting immunotherapy research for 65 years, long before the establishment cancer treatment and research community recognized immunotherapy as a legitimate prospect for cancer patients. For the past …

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Patient financial support and assistance programs

The cost of cancer care can be a major concern for patients and their families. Many national and local service organizations help people with cancer who are facing financial challenges. Several are listed below: Organization Type of support Overview Financial support search Cancer Financial Assistance Coalition is a coalition of organizations helping cancer patients manage their financial …

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Services for communicating patient updates and coordinating assistance

During the course of a health crisis, family and friends are often looking for frequent updates of the patient’s condition and ways they can be helpful to the patient and caregivers. Several web sites offer easy-to-use platforms to communicate updates and coordinate needed assistance, including: Organization Mission and overview CaringBridge Provides a forum for updates …

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Air travel assistance for patients

Cancer patients can often fly to medical treatment centers around the country – absolutely free – in the empty seats on corporate jets or on private planes. Many of these services allow patients to avoid costly airfare, delays and unnecessary exposure to airport crowds. The following organizations work with cancer patients to provide air transportation …

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Cornell – Praveen Sethupathy, PhD

Praveen Sethupathy, PhD is is an Associate Professor of Biomedical Sciences and Director of the Center for Genomics at Cornell University, where he directs a research lab focused on genomic approaches to understand human health and disease. As a FCF-funded researcher, Praveen Sethupathy and his team at Cornell University recently published a paper that discusses …

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Memorial Sloan Kettering Cancer Center – Ghassan Abou-Alfa, MD

Ghassan Abou-Alfa, MD is a gastrointestinal oncologist, specializing in primary liver cancer, pancreas, gallbladder, and bile duct tumors. His research focuses on improving the effectiveness of cancer therapy by incorporating small novel biological molecules that target cancer into the treatment of chemotherapy-resistant gastrointestinal malignancies, particularly hepatobiliary and pancreatic cancers. He has been active in many …

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