Facebook – “Fibrolamellars of the World Unite!” This is a closed group so only those touched by the disease can be part of it. We encourage all newly diagnosed patients and their families to join. Just go to facebook, type in the group name and request to be included. An administrator for the group will get back to you quickly.
Facebook – “The Fibrolamellar Cancer Foundation” facebook page
Fibroregistry.org – The registry is dedicated to helping patients advance research into fibrolamellar by sharing their medical information with researchers.