FIBROLAMELLAR
CANCER FOUNDATION
We are here to help.
FIBROLAMELLAR
CANCER FOUNDATION
We are here to help.
Announcements
- Social Security Agency Expands Compassionate Allowance List Nancy A. Berryhill, Acting Commissioner of Social Security, announced five new Compassionate Allowance conditions: Fibrolamellar Cancer, Megacystis Microcolon Intestinal Hypoperistalsis Syndrome (MMIHS), Megalencephaly Capillary Malformation Syndrome (MCAP), Superficial Siderosis of the Central Nervous System, and Tetrasomy 18p. Compassionate Allowances is a program to quickly identify medical conditions and serious diseases that meet Social Security’s standards for […]
- Advocates and scientists connect during Fibrolamellar Cancer Foundation visit to Cornell University The Fibrolamellar Cancer Foundation (FCF) recently held a research event at Cornell University hosted by Praveen Sethupathy, Ph.D ’03, Associate Professor of Biomedical Sciences, who presented to fellow researchers, Foundation board members, and a patient and his family. Dr. Sethupathy reviewed his current research toward finding therapeutic targets to fight fibrolamellar cancer. Cornell University issued […]
- A Great Opportunity to Get Involved in the Fibrolamellar Fight! The Department of Defense (DOD) is seeking 2018 PATIENT & CAREGIVER grant reviewers for three cancer categories appropriate for the Fibro community: 1) Cancer in children, adolescents and young adults (New Category); 2) Liver cancer; 3) Immunotherapy (New Category). Friends from this fibrolamellar community have been very active participants over the past three years and the […]
- A Parent’s Journey with Fibrolamellar Fbrolamellar(FLC) caregiver Tom Stockwell shares his journey with son Robert. This three-part video series discusses the following: – Initial response to diagnosis – Creating a game plan to begin the fight – Important tips for FLC caregivers and patients Note, MJ Hennessey has produced these informative interviews via Cure Connections (https://www.curetoday.com/advocacy/fibrofoundation) – a leading oncology magazine and Rare […]
