Cowboy event benefited Fibro
A young boy is currently cancer free thanks to a liver transplant from his Dad. An appreciative grandmother planned a wonderful cowboy themed event which happened in the Phoenix area April 2019 and raised funds for FCF. Details are in this news coverage from Peoria Times.
Collaborative research seeking therapeutic treatment
Cornell publishes fibrolamellar discovery which could serve as part of a new therapeutic approach. This study is a great example of the multi-institution collaboration strategy FCF continues to fund in our quest for curative therapies. Small molecules inside our bodies called “microRNAs” have emerged as very important players in the development of a wide variety […]
2019 FCF Scientific Conference
SAVE THE DATE: November 5-7, 2019 in Greenwich, CT. Details to follow.
Report on 2017 Scientific Conference
The distinquished Journal of Hepatocellular Carcinoma has published a report on FCF’s 2017 Scientific Conference. Authors are Drs. Ted Kastenhuber, Ghassan AbouAlfa, and John Craig who coordinated the writing and editing. FCF thanks these doctors for their time and commitment to this article. The article, which can be viewed here, is titled, “Road map for […]
Duke University Research Conversation and Facilities Tour
Dr. Anna Mae Diehl, Professor, Department of Medicine at Duke University and by Dr. Cynthia Guy, Associate Professor, Department of Pathology at Duke University Medical Center hosted an FCF event in October 2018. The event showcased the important fibrolamellar research work being conducted at this prestigious institution. It included an overview of FCF’s research mission, […]
FCF Scientific Director
Mark Furth, PhD, has joined FCF as Scientific Director. Having a full time scientific director adds a new realm of professionalism. Dr. Furth was educated at Harvard and University of Wisconsin. His research credentials include working at National Institute of Health, Memorial Sloan Kettering, Cold Spring Harbor Laboratories, Glaxo Smith Kline and Wake Forest University.
Social Security Agency Expands Compassionate Allowance List
Nancy A. Berryhill, Acting Commissioner of Social Security, announced five new Compassionate Allowance conditions: Fibrolamellar Cancer, Megacystis Microcolon Intestinal Hypoperistalsis Syndrome (MMIHS), Megalencephaly Capillary Malformation Syndrome (MCAP), Superficial Siderosis of the Central Nervous System, and Tetrasomy 18p. Compassionate Allowances is a program to quickly identify medical conditions and serious diseases that meet Social Security’s standards for […]
Advocates and scientists connect during Fibrolamellar Cancer Foundation visit to Cornell University
The Fibrolamellar Cancer Foundation (FCF) recently held a research event at Cornell University hosted by Praveen Sethupathy, Ph.D ’03, Associate Professor of Biomedical Sciences, who presented to fellow researchers, Foundation board members, and a patient and his family. Dr. Sethupathy reviewed his current research toward finding therapeutic targets to fight fibrolamellar cancer. Cornell University issued […]
A Parent’s Journey with Fibrolamellar
Fbrolamellar(FLC) caregiver Tom Stockwell shares his journey with son Robert. This three-part video series discusses the following: – Initial response to diagnosis – Creating a game plan to begin the fight – Important tips for FLC caregivers and patients Note, MJ Hennessey has produced these informative interviews via Cure Connections (https://www.curetoday.com/advocacy/fibrofoundation) – a leading oncology magazine and Rare […]
2018 Patient and Family Gathering
Friday Sept 7 – Sunday Sept 9, 2018, Lake Mansfield Trout Club, Stowe, Vermont – SAVE THE DATE! The Lake Mansfield Trout Club in Stowe, Vermont is a cozy, rustic lodge with plenty of spaces for conversation, walking trails and hearty fare. The gathering will start with cocktails and dinner Friday evening at 5:00 and […]