Statistics do not control outcomes
FCF’s former patient navigator, Tom Stockwell, talks about how statistics do not predict an individual patient’s journey with fibrolamellar.
2017 Highlights for FCF
RESEARCH Research Summit – FCF hosted its 2nd fibrolamellar (FLC) research conference in November. With incredible collaboration and information-sharing amongst the 20+ institutions represented, we came up with a “roadmap” for future FLC research. 2018 will see FCF put that “roadmap” into effect. FCF Summit 2017 Attendees Blueprint Medicine […]
Fibrolamellar Research Collaboration Travel Fund
The Fibrolamellar Research Collaboration Travel Fund has officially launched, following the second international fibrolamellar (FLC) research summit hosted by the FCF. The summit fostered an amazing amount of data sharing and collaborative brainstorming amongst some of the world’s greatest researchers. It was suggested by the attendees that “face-to-face” meetings are significant catalysts to facilitate ongoing […]
FCF’s Second Scientific Summit
FCF is excited to report that collaboration and sharing was the key mantra at the 2017 Summit. The presenters, researchers and physicians, shared both their published and unpublished scientific findings. After each presentation there was time for questions and answers prompting significant discussion. The wrap-up session was a round-table discussion entitled Roadmap to a Cure. […]
Shop AmazonSmile to benefit FCF
AmazonSmile is a simple and automatic way for you to support FCF every time you shop, at no cost to you. When you shop at smile.amazon.com, you’ll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com, with the added bonus that Amazon will donate a portion of the purchase price to […]
FCF and GI Cancers Alliance
FCF was selected to join GI Cancers Alliance, sponsored by Georgetown’s Lombardi Comprehensive Cancer Center. The GI Cancers Alliance was founded as a national organization in 2015 by The Ruesch Center for the Cure of Gastrointestinal Cancers as a way to bring together the various GI cancer advocacy groups. The alliances’ mission is to work together […]
Test to diagnose fibrolamellar
The Mayo Clinic just announced a test to diagnose fibrolamallar which appears to have 100% accuracy.
Research Funding Available
The Fibrolamellar Cancer Foundation (FCF) has announced a major call for proposals to support innovative research, leading to curative treatments for this aggressive teen/young adult liver cancer. Importantly, ASCO and other major organizations have noted that investigators should take high interest in this cancer. Due to patient age, this is often referred to as a […]