Press Releases

Local Rare Cancer Foundation Hosts Gathering of World Experts

Greenwich, CT – (April 21, 2023) – More than 70 cancer specialists from leading research institutions throughout the U.S. and abroad will gather in Greenwich next week.  They will share information, research progress, and strategies for improving the treatment of the rare cancer fibrolamellar carcinoma (FLC). FLC is an aggressive form of liver cancer that …

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Rare Cancer Day: Making Noise to Find Cures

Greenwich, CT – (Sept. 28, 2021) – Over 25% of all diagnosed cancers are considered rare. And few have any standard of care, or curative therapies. On this year’s Rare Cancer Awareness Day (#RareCancerDay), September 30th, one rare cancer foundation, Fibrolamellar Cancer Foundation, is showcasing how working together can create a loud impactful noise and …

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Fibrolamellar Patients And Caregivers Contribute To Research Programs Of The Department Of Defense

Greenwich, CT – (March 25, 2021) – The Fibrolamellar Cancer Foundation would like to thank fibrolamellar patients and caregivers Jennifer Strickland, Jenny Carroll, Ben Saksa, Linda Spink and Kurt Losert who recently served as consumer advocates for the Congressionally Directed Medical Research Programs’ (CDMRP) Peer Reviewed Cancer Research Program (PRCRP) and the Rare Cancers Research …

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Rare Disease Awareness Day Critical As Patients Struggle During COVID Times

Greenwich, CT – (February 26, 2021) – National Rare Disease Awareness Day (RDAD) takes place during the last week of February. This year, the awareness message is even more critical. The pandemic has caused numerous difficulties for rare disease patients, families, and the healthcare community. Major obstacles have included a delay in diagnoses, limited access …

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Rare Cancer Isn’t Uncommon: Courtney Homer’s Story

Greenwich, CT – (Sept. 30, 2020) – Despite how it sounds, a rare cancer diagnosis is not uncommon. In fact, each year when approximately 1.7 million people in the U.S. are diagnosed with cancer, more than 25% of those people will hear the words that they have been diagnosed with a rare cancer.
What is uncommon about rare cancers is a specific treatment …

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