GREENWICH, CT – (April 21, 2025) – The Fibrolamellar Cancer Foundation (FCF) is pleased to announce its partnership with Dialectic Therapeutics to supply the experimental drug DT2216 for a clinical trial involving fibrolamellar patients.
GREENWICH, CT and SAN DIEGO, CA – (February 27, 2024) – The Fibrolamellar Cancer Foundation (FCF) and Dracen Pharmaceuticals Inc., a clinical stage biotech company, announced today the initiation of enrollment in a collaborative phase I/II study of the combination of subcutaneous DRP-104 (sirpiglenastat) with intravenous durvalumab to treat fibrolamellar carcinoma (FLC).
GREENWICH, CT – (April 21, 2023) – More than 70 cancer specialists from leading research institutions throughout the U.S. and abroad will gather in Greenwich next week. They will share information, research progress, and strategies for improving the treatment of the rare cancer fibrolamellar carcinoma (FLC).
GREENWICH, CT – (February 26, 2022) – February 28th is designated Rare Disease Day. Since its launch in 2008, Rare Disease Day focuses attention on the fact that more than 30 million Americans, one in every 10 people, have been diagnosed with a rare disease, and less than 5% of the 7,000+ known rare diseases have a FDA approved treatment. Despite these staggering numbers, research funding into rare diseases remains low.
GREENWICH, CT – (February 24, 2022) – The Town of Greenwich will grant an official proclamation of February 24, 2022 as Rare Disease Awareness Day with a presentation by Greenwich First Selectman Fred Camillo at Greenwich Town Hall Thursday at 2pm.
GREENWICH, CT – (Sept. 28, 2021) – Over 25% of all diagnosed cancers are considered rare. And few have any standard of care, or curative therapies. On this year’s Rare Cancer Awareness Day (#RareCancerDay), September 30th, one rare cancer foundation, Fibrolamellar Cancer Foundation, is showcasing how working together can create a loud impactful noise and help advance research for this patient community.
GREENWICH, CT – (March 25, 2021) – The Fibrolamellar Cancer Foundation would like to thank fibrolamellar patients and caregivers Jennifer Strickland, Jenny Carroll, Ben Saksa, Linda Spink and Kurt Losert who recently served as consumer advocates for the Congressionally Directed Medical Research Programs’ (CDMRP) Peer Reviewed Cancer Research Program (PRCRP) and the Rare Cancers Research Program (RCRP). These initiatives within the Department of Defense (DOD) provide significant amount of funding to support basic, applied, and translational cancer research.
GREENWICH, CT – (February 26, 2021) – National Rare Disease Awareness Day (RDAD) takes place during the last week of February. This year, the awareness message is even more critical. The pandemic has caused numerous difficulties for rare disease patients, families, and the healthcare community.
GREENWICH, CT – (February 22, 2021) – The Town of Greenwich will grant an official proclamation of February 26, 2021 as Rare Disease Awareness Day with a presentation by Greenwich First Selectman Fred Camillo at Greenwich Town Hall Friday at 1pm, followed by a free public webinar featuring local rare disease foundations …