Press Releases

Fibrolamellar Becomes Lead Example for Rare Cancer Awareness Day

Greenwich, CT – (Sept. 25, 2020) – The Fibrolamellar Cancer Foundation is leading the way to spread the word that September 30th is designated as National Rare Cancer Awareness Day. (#RareCancerDay) Each year, approximately 1.7 million people in the U.S. are diagnosed with cancer. Of those, more than 25% (or 550,000+) are considered rare cancers. …

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Young Rare Cancer Patient Speaks Out on National Rare Disease Day

Greenwich, CT – (February 29, 2020) – Leap Day. The rarest day on the calendar and the most appropriate day to be declared as National Rare Disease Awareness Day.  This is the day, Mark A. Carles, 25, of Staten Island, NY, steps forward to spread the word of awareness to everyone. Carles was diagnosed with Fibrolamellar, an aggressive liver cancer that mostly strikes …

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October 1st Declared As Rare Cancer Day

Greenwich, CT – (Sept 30, 2019) – October 1st has been designated as Rare Cancer Day. The National Organization for Rare Disorders (NORD)®, spearheaded by its Rare Cancer Coalition, officially tagged October 1st as #RareCancerDay in order to bring attention to the fact that 25% of all cancer diagnosis are considered rare and they are …

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Cancer Research Institute and Fibrolamellar Cancer Foundation Announce Partnership to Fund Cancer Immunotherapy Research in Ultra-Rare Liver Cancer

December 6, 2016—NEW YORK CITY and GREENWICH, CT—The Cancer Research Institute (CRI), a nonprofit organization dedicated to funding cancer immunotherapy research for all types of cancer, and the Fibrolamellar Cancer Foundation (FCF), a nonprofit organization devoted to funding research in a rare but deadly form of liver cancer called fibrolamellar hepatocellular carcinoma (FHC) …

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