New: FCF Assistant

We’re testing a new AI assistant to help patients, caregivers, and researchers find information faster. Click the FCF Assistant button in the lower right corner to try it.

2026 Patient & Family Gathering registration

Please fill in the form below if you are interested in attending FCF’s  2026 Patient & Family Gathering on September 18 – 20, 2026, at the Lake Mansfield Trout Club in Stowe, Vermont!