Events

21 Apr

Transitioning to Adult Care

April 21, 2021    
2:00 pm EDT - 3:00 pm EDT
As rare disease patients approach adulthood, they face the transition from parent-supervised pediatric care to more independent adult models whereby they take ownership of their [...]
21 Apr

Caregiver Stress & Burnout

April 21, 2021    
3:00 pm EDT - 4:00 pm EDT
This webinar, hosted by Stupid Cancer, focuses on managing the stress and burnout of caregivers. After more than a year of a global pandemic, we [...]