FLC Patient & Research Summit Agenda

Below is the agenda for FCF’s Patient & Research Summit on June 9-10, 2024 in Greenwich, Connecticut.

Sunday June 9, 2024

5:30 – 7:00 pm

Cocktails and informal introductions

7:00 – 8:00 pm

Welcome by Marna Davis and Dinner

8:00 – 9:00 pm

Keynote Session: Mental Health of Cancer Patients
Moderator: Mandy McGowan
Panel: Allison Applebaum and Giselle Perez

Monday June 10, 2024

8:30 – 8:45 am

Conference introduction: Kurt Losert

Session 1: The State of FLC Research – Progress, Principles, and Next Steps in the Search for a Cure

8:45 – 9:15 am

Overview of FLC research efforts:
Mark Furth; Allison O’Neill; John Gordan; Mark Yarchoan

9:15 – 9:55 am

Progress in immunotherapy:
Moderator: Mark Furth
Panel: Marina Baretti; Allison Kirk; Juliane Walz; Lindsay Dickerson

9:55 – 10:15 am

Break

10:15 – 10:55 am

Progress in targeted therapy and precision medicine
Moderator: Allison O’Neill
Panel: Razelle Kurzrock; John Gordan; Paul Kent; Michael Ortiz

10:55 – 11:35 am

Role of interventional radiotherapy in FLC:
Moderator: Sean Ronnekleiv-Kelly
Panel: Peiman Habibollahi; Hooman Yarmohammadi; Jordan Tasse

1:35 – 12:05 pm

A team approach to FLC research and treatment: Ray Yeung

12:05 – 1:05 pm

Lunch

1:05 – 1:15 pm

Biobank update: Patty Cogswell

Session 2: Patient and Caregiver Perspectives

1:15 – 1:55 pm

Patient treatment experiences, challenges and unmet needs:
Moderators: Destiny Haggett and Jamie Crook
Panel:  David Burch; Kyle Hofstetter; Kielan Wilson-Premo; Parker Hall;
Tracy Erickson

1:55 – 2:35 pm

Caregiving challenges:
Moderators: Destiny Haggett and Jamie Crook
Panel: Jen Short; Kris Burch; Katie Hofstetter; Ardeth Gregg; Melissa Findley

2:35 – 2:50 pm

Break

Session 3: Community Action Planning – Ideas and Initiatives

2:50 – 3:10 pm

Team problem solving/survey results: Jennifer Strickland

3:10 – 3:55 pm

Breakout groups: Identification of issues and opportunities for improvement

3:55 – 4:25 pm

Breakout group readouts and discussion

4:25 – 4:40 pm

Meeting summary and next steps