Social Security Administration
The Social Security Administration has designated fibrolamellar as one of the diseases which may be fast tracked to get disability designation. The official announcement details from August 21, 2018 are included here.
Medical care, travel, legal and other financial support
St. Jude Children’s Research Hospital
St. Jude Children’s Research Hospital is based in Memphis, TN but has affiliate care throughout the United States. Families never receive a bill from St. Jude for treatment, travel, housing or food. St. Jude accepts insurance but many services provided by St. Jude have never been covered by insurance, and will not be in the future.
Healthcare Hospitality Network
Healthcare Hospitality Network is a nationwide professional association of nearly 200 unique, nonprofit organizations that provide lodging and support services to patients, families and their loved ones who are receiving medical treatment far from their home communities. Hospital hospitality houses (HHH) provide free or significantly reduced cost lodging to patients and their families while receiving …
Northwestern Mutual Foundation
Northwestern Mutual Foundation offers two scholarships: one for childhood cancer survivors and one for siblings of those affected by childhood cancer. These students deserve every opportunity to pursue higher education and continue to achieve their dreams. Both are open to individuals of age 25 and under, who plan to continue their education in college or …
Spare Key
Spare Key’s mission is to provide assistance to families with a critically ill or seriously injured family member. No matter the illness, no matter the injury, no matter the income. They help families “Bounce and Not Break” through their Help Me Bounce platform, harnessing the power of crowdfunding to connect thousands of families directly to …
Air Charity Network
Air Charity Network serves all 50 states and its volunteer pilots utilize their own aircraft, fuel and time to provide free air transportation to medical facilities for citizens who are financially distressed or otherwise unable to travel on public transportation. Air Charity Network members also coordinate flights to fly organ transplant candidates, people involved in …
National Children’s Cancer Society
The National Children’s Cancer Society’s Transportation Assistance Fund alleviates the financial burden of travel and lodging for families who have a child with cancer. This fund helps cover transportation expenses such as mileage, airfare and lodging when a child needs to stay near the hospital for treatment and nonprofit lodging is unavailable.
Cancer for College
Since 1993, Cancer for College, has provided need-based college scholarships and educational experiences to cancer survivors. Cancer for College provides a number of different scholarship offers in different regions of the United States.
National Children’s Cancer Society
The Beyond the Cure Ambassador Scholarship Program is sponsored by the National Children’s Cancer Society. These scholarships are for childhood cancer survivors who have demonstrated the ability to overcome the difficult challenges of cancer with determination and motivation. Fifty-eight $3,500 scholarships are awarded each academic year. Applications must be a cancer survivor under the age …