Because of the covid-19 crisis, our 8th annual patient and family gathering went virtual. Instead of meeting at the Lake Mansfield Trout Club in Stowe, Vermont, FCF hosted a series of four interactive events on Zoom. Included were a webinar discussing recent FCF activities and the state of fibrolamellar research, an interactive “happy hour” for …
FCF is committed to supporting patients and caregivers throughout their experience with FLC. We want to make sure that individuals with fibrolamellar are educated about their disease, feel connected to fibrolamellar community, have access to experienced physicians and know about current research into treatments and cures. Whether you are living with FLC or a loved …
A diagnosis of fibrolamellar hepatocellular carcinoma is difficult, not just because of the seriousness of the disease but also because of its rarity. Many fibrolamellar patients and families never knew anyone else with their disease. That has changed both because of this Foundation and thanks to a community of patients and families who are part …
This page contains lists of resources that members of our community have found helpful. If you know of other resources or organizations that should be added to these lists, please let us know.