A Parent’s Journey

Fibrolamellar (FLC) caregiver Tom Stockwell shares his journey with fibrolamellar with his son Robert. This three-part video series discusses the following: Initial response to the fibrolamellar diagnosis Creating a game plan to begin the fight against the disease Important tips for fibrolamellar caregivers and patients. When these videos were taken Tom Stockwell was patient navigator …

Read moreA Parent’s Journey

Read more

A Mother’s Story

The following story is my journey with our son’s fibrolamellar…a journey that did not end well as he passed away in 2010. I hope your journeys do not end the same way. I have written this to tell you how I got through Tucker’s illness, and then afterwards…perhaps this is a good time for you …

Read moreA Mother’s Story

Read more