Since Tucker Davis founded FCF in 2009, the organization has sponsored a wide range of events, including:
- Fundraising events that have raised significant funds for fibrolamellar research
- Community building events that have provided opportunities for patients and families to meet each other and share experiences and information
- Educational and scientific events such as topical discussions for patients and families and annual scientific conferences for researchers in the field.
The following calendar list includes key upcoming events sponsored either by FCF or one of our partner organizations. If you have an event relevant to the fibrolamellar community that you’d like to add to the schedule, please click here.
Dec 2024
Jun 2025
Other important events for the fibrolamellar community held throughout the year include:
Stone Point Capital Golf Outing. Since 2009 Stone Point Capital’s annual charity golf tournament has dedicated the proceeds to FCF. This is the largest source of funding at the Foundation.
NYC Marathon. For many of the years since the founding of FCF there have been runners in the New York City Marathon raising money for fibrolamellar live cancer. FCF runners are with Fred’s Team from Memorial Sloan-Kettering (MSKCC). Fred Lebow was the co-founder of the NYC Marathon in 1970. In 1990 Fred was diagnosed with brain cancer. He was treated at MSK and jogged down the hospital hallways during his recovery. He ran the marathon for the last time in 1992 when his cancer was in remission finishing in 5 hours and 32 minutes. Fred died in 1994. Although part of Fred’s Team, all funds raised by FCF runners go directly to the Fibrolamellar Research Fund set up at MSKCC and are used only for fibrolamellar research.
Cycle for Survival happens each year in locations around the U.S.A. including Boston, Chicago, Connecticut, Long Island, Los Angeles, Miami, New York City, San Francisco, New Jersey, and Washington, D.C. If you live anywhere near one of these places and want to raise money for FCF while getting exercise at the same time, please check out Cycle for Survival and then contact Lynn to let her know your plans. Cycle for Survival is a Memorial Sloan-Kettering Cancer Center fundraiser for rare cancers but riders can designate the specific research they want funded through the event.
Free Fall to Fight Cancer – in honor of Zach Grullon. This amazing sky diving event, held in coordination with the US Army Golden Knights, honors Zach’s life has been held since 2012 with almost $70,000 raised in total.
Fibrolamellar Calendar. For many years there has been a calendar featuring fibrolamellar patients on their birthday months. The design, production and sales of the calendar was originally conceived and coordinated by Gail Trecosta, parent of patient Matthew (1999-2014.) The Foundation now coordinated the production of the calendar with the help of the Patient & Caregiver Advisory Board.
Cheers to Jay and Jumping for Jay. The Alexander family has held events each year honoring their son Jay since his passing in 2011. Cheers to Jay was a fundraising event at a local bar. A Jumping for Jay skydiving event happens almost annually, and Jay’s sister ran in the NYC marathon. The total from these events is well over $100,000! Thank you Alexanders for all you do for FCF!
The Patient & Family Gathering is a key event on the Foundation calendar. For several years this has been held in Stowe, VT at no cost to patients and families. It is a time for bonding and exchanging advice and information. It fulfills the Foundation’s mission to connect and support the fibrolamellar community of patients and their families.
Please see the calendar for more information or to register!