Caregiver Profiles

This launches the first in a series of caregiver profiles.  The goal is to share experiences and knowledge with the community from those who are facing (or have faced)  the challenges of FLC.

Fibrolamellar (FLC) Caregiver Tom Stockwell has taken a very visible role in the FLC community, driven by his journey with son Robert, and his promise to help others.  An active collaborator with the Fibrolamellar Cancer Foundation, Tom started Fibro Fighters www.fibrofighters.org to share his knowledge with caregivers and patients.  In this three part video created by CURE magazine, Tom shares a wealth of knowledge including:

  • Initial response to the fibrolamellar diagnosis
  • Creating a game plan to begin the fight against the disease
  • Important tips for fibrolamellar caregivers and patients.

Note: When these videos were produced, Tom Stockwell was FCF’s patient navigator, and therefore is referenced as such. While no longer serving in that role since the launch of Fibro Fighters, Tom remains active in contributing to FCF, for which we are grateful.

Each video can be viewed below.

Initial Response

Creating a plan

Key tips

Note: MJ Hennessey produced these informative interviews with FCF via Cure Connections, a leading on-line oncology magazine.