Fibrolamellar patients are encouraged to participate in the Natural History Study of Rare Solid Tumors, currently underway at the National Cancer Institute (NCI) in Bethesda, Maryland. The purpose of this study is to better understand how rare solid tumors develop and grow. Natural history studies like this will help researchers learn more about fibrolamellar carcinoma …
Congratulations to Jessica Ellison of Rush University Medical Center in Chicago who was recently named a finalist by the CURE Media Group for their 2021 Extraordinary Healer® Award for Oncology Nursing. This award honors outstanding nurses for their compassion and contributions to oncology care. Jessica Ellison, MSN, RN, CNL is a transplant coordinator at Rush …
In the following article, published by the Greenwich Sentinel on March 19, Marna Davis shares the story of the Fibrolamellar Cancer Foundation. In it, she outlines her son Tucker’s experience with fibrolamellar carcinoma, explains the history and mission of the foundation, and expresses her optimism about the progress that is being made against the disease. …
The Department of Defense (DOD) is seeking 2021 PATIENT & CAREGIVER grant reviewers for two cancer categories appropriate for the Fibro community: Over the last several years, friends from the fibrolamellar community have been very active participants in the DOD’s Peer Reviewed Cancer Research Program (PRCRP), working alongside prominent scientists to provide input on how the DOD’s research funds …
Fibrolamellar fighter Mark Carles described his fight with FLC and the challenges he has faced over the last year at a “Rare Disease Day” event held in Greenwich, Connecticut on February 26, 2021. Carles, a former triathlete and graduate student, was diagnosed in October 2018 at the age of 24. In his remarks, Mark said that …
When childhood cancer strikes, it has a devastating impact on the patients and their families. The cost of treatment can lead to long-term financial challenges, including questions of how to afford higher education. Below is a story about Adam Gregg, a fibrolamellar fighter, and his family that was posted on the web media channel Romper …
A new clinical trial for fibrolamellar carcinoma (FLC) is now recruiting subjects at the University of Texas M.D. Anderson Cancer Center in Houston, Texas. This phase I/II trial studies the safety, tolerability, and effectiveness of a combination of nivolumab, 5-fluorouracil (5-FU), and interferon alpha-2b (IFN-α2b) for the treatment of fibrolamellar cancer that cannot be removed …
This month, FCF is hosting the first of a series of research-oriented Virtual Open Houses and expert panel discussions focused on the evolution of research and clinical care in FLC. These events are designed to highlight the breadth of fibrolamellar research activity currently underway at leading academic medical centers throughout the country, and to discuss …
Please join FCF and your fibrolamellar family and friends on December 21, 2020 at 7:30 pm EST to spread some holiday cheer! All fibrolamellar patients and caregivers are welcome to stop by to say hello to your friends and listen to music featuring Glenn and Oria Alexander. Enjoy a hot cocoa, or cocktail, and wear …