We are pleased to announce that FCF has awarded Dr. Marina Baretti and Dr. Mark Yarchoan of Johns Hopkins University a grant to launch a new clinical trial for FLC patients. Both investigators have extensive experience in treating patients with FLC and in the development of immunotherapies. They already have collaborated closely on the clinical …
FCF is pleased to announce that it has entered into a partnership agreement with Dracen Pharmaceuticals, Inc. to supply a glutamine antagonist pro-drug, DRP-104 (sirpiglenastat), for a planned clinical trial in fibrolamellar patients. Under the agreement, Dracen will provide the product, as well as regulatory and operational support for the trial. In fibrolamellar carcinoma, recent …
FCF is pleased to announce the award of a grant to Benedetta Artegiani, PhD of the Princess Maxima Center for Pediatric Oncology (Utrecht, The Netherlands) and Delilah Hendriks, PhD of the Hubrecht Institute (Utrecht, The Netherlands). This new 2 year grant, entitled “Unravelling the tumorigenic requirements of fibrolamellar carcinoma using novel engineered DNAJB1-PKRACAfus and BAP1KO; …
Registration for FCF’s 2023 Patient & Family Gathering is now open! Each year, the Patient & Family Gathering is a key event on the Foundation calendar. FCF considers gathering patients and families to be part of our mission, as knowing each other and being together brings strength and support to the group. This weekend event …
Since 2011, immunotherapies have become an important treatment for more than 20 types of cancer, with that number set to increase. The Cancer Research Institute (CRI), a nonprofit organization dedicated to fueling the discovery and development of immunotherapies for all types of cancer, has declared the month of June “Cancer Immunotherapy Month” to highlight that …
FCF is pleased to announce that Guy Levy has joined FCF’s Board of Directors. As our key leadership body, the Board of Directors helps assess and approve FCF’s research grants, and ensures that all important FCF decisions are in keeping with our mission and goals. Guy’s background and experience should be invaluable to the Foundation. He …
FCF is thrilled to announce that Payal Ray, PhD has joined our team as our new Research Program Director! Payal is a molecular geneticist by training and received her PhD from Northwestern University. She completed her postdoctoral training at the NIH and was an Assistant Professor at a liberal arts institution pursuing research in the …
The DOD has asked FCF to help to recruit FLC community members to serve as consumer reviewers for this fall’s CDMRP grant review process. This …
FCF is pleased to announce that Jaime Crook has joined our Patient & Caregiver Advisory Board. This group of highly committed volunteers meet and share their perspectives to help improve FCF’s research, educational, and support programs to better serve patients and families fighting this awful disease. When she was six years old, Jamie regularly complained …