FibroConnect

What is FibroConnect?

Support from someone who has been there can make all the difference. FibroConnect is a free, confidential one-to-one peer matching program that helps patients with fibrolamellar carcinoma, their caregivers or family members connect about shared experiences. Whatever you’re going through, there is someone who has been through a similar experience and can answer questions or offer support. Peer mentors can share their experiences, listen to your challenges, encourage you, and talk about everyday life.

“It’s helpful to be able to talk to someone who has been there and has experienced similar issues during their fibrolamellar journey.
— Kurt, FLC caregiver

You can request a peer mentor who shares similar age or experiences as you, or can talk about topics that are important to you, such as:

  • Dealing with your child’s diagnosis
  • Going to college
  • Making work/career decisions
  • Dating, relationships, and marriage
  • Finding balance as a caregiver
  • Parenting
  • Getting diagnosed as a teen or adult
  • Survivor’s guilt
  • Coping with systemic therapies
  • Dealing with life after treatment
  • Bereaving

Peer mentors can serve as a sounding board, and if requested, suggest helpful information and resources. Mentors will not serve as health professionals and can not provide medical, legal or psychological advice. The connection between you and your peer mentor may involve only a few phone calls, or it may develop into a longer relationship — whatever is most helpful for you.

Get started in 3 simple steps

  1. Click the appropriate link below if you are looking for a mentor or are interested in becoming a mentor.
  2. The program team will review your submission and match you with someone who best fits your request.
  3. Connect with your peer over video, phone, email, or text.

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