Announcements

FCF launches new series of research-focused virtual events

This month, FCF is hosting the first of a series of research-oriented Virtual Open Houses and expert panel discussions focused on the evolution of research and clinical care in FLC. These events are designed to highlight the breadth of fibrolamellar research activity currently underway at leading academic medical centers throughout the country, and to discuss clinical and research topics important to the fibrolamellar community. The first three events are currently on the calendar!

These initial events include:

This Research Virtual Open House is designed to showcase the patient experience and fibrolamellar research activity at the University of Washington, a leading academic medical center. A distinguished panel of experts from UW and a fibrolamellar patient will guide the audience through a virtual tour of the patient experience at UW and will spotlight their latest fibrolamellar research.

Program Highlights:

  • Explore behind-the-scenes research activities at the University of Washington
  • Learn about UW’s latest research developments and how the clinical and research universes intersect
  • Experience the clinical journey through the eyes of a fibrolamellar patient
  • Engage with the panel of experts

Featured Panelists:

  • David Burch
    Fibrolamellar Cancer Foundation Patient Ambassador
  • Bill Harris, MD
    Associate Professor, GI Medical Oncology
    University of Washington
    Seattle Cancer Care Alliance
    Fred Hutchinson Cancer Research Center
  • Sophia My-Linh Lauer, PhD Candidate
    Department of Pharmacology
    University of Washington School of Medicine
  • Kimberly J. Riehle, MD, FACS, FAAP
    Associate Professor of Surgery, Division of Pediatric General and Thoracic Surgery
    University of Washington
    Seattle Children’s Hospital
  • Venu G. Pillarisetty, MD, FACS
    Associate Professor
    HPB Surgical Oncology
    University of Washington School of Medicine
    Medical Director Continuous Performance Improvement, Seattle Cancer Care Alliance
  • Raymond S.W. Yeung MD, FRCS (C), FACS
    Professor of Surgery and Director of Liver Tumor Clinic
    University of Washington School of Medicine
  • John D. Scott, PhD
    Edwin G. Krebs-Speights Professor of Cell Signaling and Cancer Biology
    Chair, Department of Pharmacology
    University of Washington School of Medicine

Invited Audience:

Fibrolamellar patients, caregivers and others interested in learning about FLC research and clinical care at a premier academic medical center are invited. Medical and research professionals are welcome as well.


Please register soon, space is limited!

This on-line panel discussion aims to outline and explore the current state of treatment options for FLC, as well potential medium-term and longer term advances in patient care. Panel experts will include oncologists, researchers, and surgeons representing both the adult and pediatric fields.  Representatives from a wide range of leading medical institutions are expected to participate, including Cincinnati Children’s Hospital Medical Center, Johns Hopkins, Memorial Sloan Kettering Cancer Center, Rush University, Seattle Children’s Hospital and UCSF.

Invited Audience:

Fibrolamellar patients, caregivers and others interested in learning about the evolution of FLC treatment options are invited. Medical and fibrolamellar research professionals are welcome as well.


This on-line panel discussion will focus on exploring the role of clinical trials in fibrolamellar carcinoma treatment. A panel of clinical and research experts from leading medical centers will discuss the expected evolution of clinical trials for FLC. Specific topics to be covered will include:

  • What are clinical trials and why are they so important?
  • What trials now exist for fibrolamellar carcinoma?
  • What promising research areas could lead to future trials?

More details and Zoom Webinar registration coming soon!

Please join us for these events to learn about the exciting advances currently underway in fibrolamellar research and clinical care!