Thank you for agreeing to attend FCF’s first ever Patient & Research Summit! We want this to be a collaborative working session, where fibrolamellar patients, caregivers, clinicians and researchers discuss important research topics, and identify opportunities to improve and accelerate fibrolamellar research activities.
To help make the event as productive as possible, please take a few minutes to complete the following survey. The survey has several objectives:
- Providing basic background information about attendees that will be included in an event program that will be distributed to all participants
- Identifying specific questions the group would like to addressed during the meeting
- Assessing satisfaction with current patient participation levels in research initiatives
- Understanding potential areas and ideas for improvement.
We’ll summarize and share the results with everyone at the meeting.