Fibrolamellar Patient & Research Summit – Patient Survey

Thank you for agreeing to attend FCF’s second Patient & Research Summit! We want this to be a collaborative working session, where fibrolamellar patients, caregivers, clinicians and researchers discuss important research topics, and identify opportunities to improve and accelerate fibrolamellar research activities.

To help make the event as productive as possible, please take a few minutes to complete the following survey. The survey has several objectives:

  • Providing basic background information about attendees that will be included in the event program
  • Identifying specific questions the group would like addressed during the meeting sessions
  • Assessing participation levels in research initiatives and obstacles to broader participation
  • Outlining participants’ need for additional information about research and treatment options
  • Understanding potential ideas for community improvement.

We’ll summarize and share the aggregated results with everyone at the meeting. Specific responses will not be attributed to any individual.