The National Cancer Institute My Pediatric and Adult Rare Tumor Network (MyPART) is a group of scientists, patients, advocates, and healthcare providers who want to help find treatments for rare cancers. They are currently are working on childhood, teen, and young adult solid rare tumors that have no cures. As part of that effort, their …
One Bite At A Time: Nourishing Recipes for Cancer Survivors And Their Families by Rebecca Katz. This cookbook offers more than 85 recipes, featuring full nutritional analysis and anecdotes from cancer survivors. Chef Rebecca Katz shares delicious, nourishing recipes for cancer patients, who often experience culinary ups and downs because of sudden dietary restrictions and …
MolecularMatch provides physicians, nurse navigators, or patients information on specific treatments for specific mutations and cancers. They match a patient’s personalized patient details to clinical trials, targeted therapies and immunotherapies, and provide linkages to related literature and publications.
FCF’s YouTube Channel includes a series of videos produced for the FLC community including virtual research tours, research updates, clinical trial overviews and panel discussions.
NORD, the National Organization for Rare Diseases, is an advocacy organization dedicated to improving the lives of individuals and families living with rare diseases. Its offers a database of reports on more than 1,200 diseases, plus a resource center with free webinars, fact sheets, infographics and other helpful materials.
Between Two Kingdoms is the well-written memoir of Suleika Jaouad. It is a deeply moving story of illness and recovery that traces one young woman’s cancer journey from diagnosis to remission to re-entry into “normal” life. Some readers may recognize her name from her syndicated “Life, Interrupted” column from the New York Times.
Cancer: 50 Essential Things to Do by Greg Anderson empowers cancer patients and their loved ones to move beyond their disease. Greg Anderson, a cancer survivor, designed this book for the recently diagnosed, those with recurring symptoms, and those who are well but have a lingering fear that the disease may strike again.
Glimpses of Heaven: True Stories of Hope and Peace at the End of Life’s Journey by Trudy Harris. New York Times bestseller Glimpses of Heaven gives an intimate look at the final thoughts, words, and visions of terminally ill and dying people. Told through the eyes of former hospice nurse Trudy Harris, more than forty …
The Cancer Diet Cookbook: Comforting Recipes for Treatment and Recovery by Dionne Detraz RD. No matter what your cancer journey may be, it’s essential to make sound dietary choices during this incredibly challenging time. The Cancer Diet Cookbook can help you during treatment and recovery by offering tons of healthy and tasty meal options made …