FLC research data initiative
The Fibrolamellar Registry is focused on helping patients advance research into fibrolamellar by sharing their medical information with researchers. Its patient registry gathers survey information, medical histories, and test results for patients with FLC, and stores them in a highly secure database.
The Natural History Study of Rare Solid Tumors, currently underway at the National Cancer Institute (NCI), is enrolling patients to better understand how rare solid tumors develop and grow. Natural history studies like this will help researchers learn more about fibrolamellar carcinoma (FLC) and other rare cancers and help shape the design and development of …
xCures is a venture-backed company that has developed a platform that arms advanced cancer patients and their oncologists with tools to make informed point of care decisions. Using the xCures platform, FLC patients and their care teams can benefit from the collective data, knowledge and experiences of everyone in the network, and in return, provide …