Events Calendar

Participants in the first Patient & Family Gathering, 2012

Since Tucker Davis founded FCF in 2009, the organization has sponsored a wide range of events, including:

  • Fundraising events that have raised significant funds for fibrolamellar research
  • Community building events that have provided opportunities for patients and families to meet each other and share experiences and information
  • Educational and scientific events such as topical discussions for patients and families and annual scientific conferences for researchers in the field.

The following calendar and list include key upcoming events sponsored either by FCF or one of our partner organizations.

  • Within the calendar, FCF-sponsored events are displayed in green; FibroFighters Foundation and other FLC-oriented events are displayed in blue; all other partner-sponsored events are displayed in orange.
  • The list view includes all FCF and partner-sponsored events for each month.

If you have an event relevant to the fibrolamellar community that you’d like to add to the calendar, please click here.


Feb 2024

AYAs' Priorities for Care While Living with Advanced Cancer – February 28, 2024 at 12:00 pm EST - 1:00 pm EST

Mar 2024

Elephants and Tea Virtual Happy Hour – March 1, 2024 at 5:30 pm EST - 7:30 pm EST
Webinar: Career Shifting: Tips, Tools and Techniques – March 6, 2024 at 6:00 pm EST - 7:00 pm EST
Elephants and Tea Virtual Happy Hour – March 8, 2024 at 5:30 pm EST - 7:30 pm EST
Elephants and Tea Virtual Happy Hour – March 15, 2024 at 5:30 pm EDT - 7:30 pm EDT
Cancer and Careers: 2024 Midwest Conference on Work and Cancer – March 22, 2024 at 10:00 am EDT - 5:00 pm EDT
Elephants and Tea Virtual Happy Hour – March 22, 2024 at 5:30 pm EDT - 7:30 pm EDT
Improving Access to Fertility Preservation – March 26, 2024 at 2:00 pm EDT - 3:00 pm EDT
Elephants and Tea Virtual Happy Hour – March 29, 2024 at 5:30 pm EDT - 7:30 pm EDT

Apr 2024

Webinar: First Impressions - Resumes and LinkedIn – April 3, 2024 at 1:00 pm EDT - 2:00 pm EDT
Elephants and Tea Virtual Happy Hour – April 5, 2024 at 5:30 pm EDT - 7:30 pm EDT
Elephants and Tea Virtual Happy Hour – April 12, 2024 at 5:30 pm EDT - 7:30 pm EDT
Elephants and Tea Virtual Happy Hour – April 19, 2024 at 5:30 pm EDT - 7:30 pm EDT
Elephants and Tea Virtual Happy Hour – April 26, 2024 at 5:30 pm EDT - 7:30 pm EDT

May 2024

Webinar: Networking - Unlock New Opportunities – May 1, 2024 at 1:00 pm EDT - 2:00 pm EDT
Elephants and Tea Virtual Happy Hour – May 3, 2024 at 5:30 pm EDT - 7:30 pm EDT
Elephants and Tea Virtual Happy Hour – May 10, 2024 at 5:30 pm EDT - 7:30 pm EDT
Triage Cancer - May 2024 Conference – May 17, 2024 - May 18, 2024 at 11:00 am EDT - 5:30 pm EDT
Elephants and Tea Virtual Happy Hour – May 17, 2024 at 5:30 pm EDT - 7:30 pm EDT
Elephants and Tea Virtual Happy Hour – May 24, 2024 at 5:30 pm EDT - 7:30 pm EDT

Other important events for the fibrolamellar community held throughout the year include:

Stone Point Capital Golf Outing. Since 2009 Stone Point Capital’s annual charity golf tournament has dedicated the proceeds to FCF.  This is the largest source of funding at the Foundation.

NYC Marathon. For many of the years since the founding of FCF there have been runners in the New York City Marathon raising money for fibrolamellar live cancer. FCF runners are with Fred’s Team from Memorial Sloan-Kettering (MSKCC).  Fred Lebow was the co-founder of the NYC Marathon in 1970.  In 1990 Fred was diagnosed with brain cancer.  He was treated at MSK and jogged down the hospital hallways during his recovery. He ran the marathon for the last time in 1992 when his cancer was in remission finishing in 5 hours and 32 minutes.  Fred died in 1994.  Although part of Fred’s Team, all funds raised by FCF runners go directly to the Fibrolamellar Research Fund set up at MSKCC and are used only for fibrolamellar research.

Cycle for Survival happens each year in locations around the U.S.A. including  Boston, Chicago, Connecticut, Long Island, Los Angeles, Miami, New York City, San Francisco, New Jersey, and Washington, D.C. If you live anywhere near one of these places and want to raise money for FCF while getting exercise at the same time, please check out Cycle for Survival and then contact Lynn to let her know your plans.  Cycle for Survival is a Memorial Sloan-Kettering Cancer Center fundraiser for rare cancers but riders can designate the specific research they want funded through the event.

Free Fall to Fight Cancer – in honor of Zach Grullon. This amazing sky diving event, held in coordination with the US Army Golden Knights, honors Zach’s life has been held since 2012 with almost $70,000 raised in total.

Fibrolamellar Calendar. For many years there has been a calendar featuring fibrolamellar patients on their birthday months. The design, production and sales of the calendar was originally conceived and coordinated by Gail Trecosta, parent of patient Matthew (1999-2014.) The Foundation now coordinated the production of the calendar with the help of the Patient & Caregiver Advisory Board.

Cheers to Jay and Jumping for Jay. The Alexander family has held events each year honoring their son Jay since his passing in 2011. Cheers to Jay was a fundraising event at a local bar. A Jumping for Jay skydiving event happens almost annually, and Jay’s sister ran in the NYC marathon.  The total from these events is well over $100,000! Thank you Alexanders for all you do for FCF!

The Patient & Family Gathering is a key event on the Foundation calendar. For several years this has been held in Stowe, VT at no cost to patients and families. It is a time for bonding and exchanging advice and information. It fulfills the Foundation’s mission to connect and support the fibrolamellar community of patients and their families.

Please see the calendar for more information or to register!