Events Calendar

Participants in the first Patient & Family Gathering, 2012

Since Tucker Davis founded FCF in 2009, the organization has sponsored a wide range of events, including:

  • Fundraising events that have raised significant funds for fibrolamellar research
  • Community building events that have provided opportunities for patients and families to meet each other and share experiences and information
  • Educational and scientific events such as topical discussions for patients and families and annual scientific conferences for researchers in the field.

The following calendar and list include key upcoming events sponsored either by FCF or one of our partner organizations.

  • Within the calendar, FCF-sponsored events are displayed in green; FLC-focused events sponsored by different organizations are displayed in blue; all other events are displayed in orange.
  • The list view includes all FCF and partner-sponsored events for each month.

If you have an event relevant to the fibrolamellar community that you’d like to add to the calendar, please click here.

Aug 2024

Webinar: Communicating Effectively, Part 1 – August 7, 2024 at 6:00 pm EDT - 7:00 pm EDT

Sep 2024

Webinar: Communicating Effectively, Part 2 – September 11, 2024 at 6:00 pm EDT - 7:00 pm EDT
2024 Patient & Family Gathering – September 13, 2024 - September 15, 2024 at 3:00 pm EDT - 12:00 pm EDT
Elephants and Tea: Healing Through Writing Workshop – Ghosts – September 25, 2024 at 6:30 pm EDT - 8:00 pm EDT

Oct 2024

Webinar: Setting Boundaries – October 9, 2024 at 6:00 pm EDT - 7:00 pm EDT
Triage Cancer - October 2024 Conference – October 25, 2024 - October 26, 2024 at 11:00 am EDT - 5:30 pm EDT

Nov 2024

Webinar: Balancing Work and Caregiving – November 6, 2024 at 6:00 pm EST - 7:00 pm EST
Tips on Accessing Care – November 19, 2024 at 2:00 pm EST - 3:30 pm EST

Dec 2024

Webinar: Self-Care - Practical Approaches at Work and Beyond – December 4, 2024 at 1:00 pm EST - 2:00 pm EST
Elephants and Tea: Healing Through Writing Workshop Series - Expectations – December 18, 2024 at 6:30 pm EST - 8:00 pm EST

Jun 2025

FLC Scientific Summit 2025 – June 9, 2025 - June 11, 2025 at 5:00 pm EDT - 12:00 pm EDT

Other important events for the fibrolamellar community held throughout the year include:

Stone Point Capital Golf Outing. Since 2009 Stone Point Capital’s annual charity golf tournament has dedicated the proceeds to FCF.  This is the largest source of funding at the Foundation.

NYC Marathon. For many of the years since the founding of FCF there have been runners in the New York City Marathon raising money for fibrolamellar live cancer. FCF runners are with Fred’s Team from Memorial Sloan-Kettering (MSKCC).  Fred Lebow was the co-founder of the NYC Marathon in 1970.  In 1990 Fred was diagnosed with brain cancer.  He was treated at MSK and jogged down the hospital hallways during his recovery. He ran the marathon for the last time in 1992 when his cancer was in remission finishing in 5 hours and 32 minutes.  Fred died in 1994.  Although part of Fred’s Team, all funds raised by FCF runners go directly to the Fibrolamellar Research Fund set up at MSKCC and are used only for fibrolamellar research.

Cycle for Survival happens each year in locations around the U.S.A. including  Boston, Chicago, Connecticut, Long Island, Los Angeles, Miami, New York City, San Francisco, New Jersey, and Washington, D.C. If you live anywhere near one of these places and want to raise money for FCF while getting exercise at the same time, please check out Cycle for Survival and then contact Lynn to let her know your plans.  Cycle for Survival is a Memorial Sloan-Kettering Cancer Center fundraiser for rare cancers but riders can designate the specific research they want funded through the event.

Free Fall to Fight Cancer – in honor of Zach Grullon. This amazing sky diving event, held in coordination with the US Army Golden Knights, honors Zach’s life has been held since 2012 with almost $70,000 raised in total.

Fibrolamellar Calendar. For many years there has been a calendar featuring fibrolamellar patients on their birthday months. The design, production and sales of the calendar was originally conceived and coordinated by Gail Trecosta, parent of patient Matthew (1999-2014.) The Foundation now coordinated the production of the calendar with the help of the Patient & Caregiver Advisory Board.

Cheers to Jay and Jumping for Jay. The Alexander family has held events each year honoring their son Jay since his passing in 2011. Cheers to Jay was a fundraising event at a local bar. A Jumping for Jay skydiving event happens almost annually, and Jay’s sister ran in the NYC marathon.  The total from these events is well over $100,000! Thank you Alexanders for all you do for FCF!

The Patient & Family Gathering is a key event on the Foundation calendar. For several years this has been held in Stowe, VT at no cost to patients and families. It is a time for bonding and exchanging advice and information. It fulfills the Foundation’s mission to connect and support the fibrolamellar community of patients and their families.

Please see the calendar for more information or to register!