Events Calendar

Participants in the first Patient & Family Gathering, 2012

Since Tucker Davis founded FCF in 2009, the organization has sponsored a wide range of events, including:

  • Fundraising events that have raised significant funds for fibrolamellar research
  • Community building events that have provided opportunities for patients and families to meet each other and share experiences and information
  • Educational and scientific events such as topical discussions for patients and families and annual scientific conferences for researchers in the field.

The following calendar and list include key upcoming events sponsored either by FCF or one of our partner organizations.

  • Within the calendar, FCF-sponsored events are displayed in green; FibroFighters Foundation and other FLC-oriented events are displayed in blue; all other partner-sponsored events are displayed in orange.
  • The list view includes all FCF and partner-sponsored events for each month.

If you have an event relevant to the fibrolamellar community that you’d like to add to the calendar, please click here.

Sep 2023

Barriers, Breakthroughs, & Progress in Rare Cancer – September 27, 2023 at 2:00 pm EDT - 3:00 pm EDT
The Great Pumpkin: A Fall Evening of Journal Writing – September 28, 2023 at 6:00 pm EDT - 7:30 pm EDT

Oct 2023

Balancing Work & Cancer Webinar: Communicating Effectively Part 2 – October 4, 2023 at 6:00 pm EDT - 7:00 pm EDT
Healing Through Writing Workshop – October 5, 2023 at 6:00 pm EDT - 7:30 pm EDT
Bridging the Gap Workshop – Overcoming Social Support Challenges for AYAs with Cancer – October 10, 2023 at 12:00 pm EDT - 3:00 pm EDT
Perkatory: Rituals and Hobbies for Coping – October 12, 2023 at 7:00 pm EDT - 8:30 pm EDT
Triage Cancer Conference – October 14, 2023 at 11:00 am EDT - 7:30 pm EDT
Getting Ready for Open Enrollment – October 19, 2023 at 1:00 pm EDT - 2:30 pm EDT
Purpose in Planning Coping Circle Series – October 24, 2023 at 1:00 pm EDT - 2:30 pm EDT
Sexual Health in AYA-O Care – October 26, 2023 at 12:00 pm EDT - 1:00 pm EDT

Nov 2023

Onco-Fertility – November 1, 2023 at 12:00 pm EDT - 1:00 pm EDT
Balancing Work & Cancer Webinar: Balancing Work & Caregiving – November 1, 2023 at 6:00 pm EDT - 7:00 pm EDT
Perkatory: Survivor’s Guilt – November 9, 2023 at 7:00 pm EST - 8:30 pm EST
Cancer Caregivers: Rights & Resources – November 15, 2023 at 11:30 am EST - 1:00 pm EST
Cancer Caregivers: Rights & Resources – November 15, 2023 at 1:00 pm EST - 2:30 pm EST
Current Perspectives on Cancer Survivorship – November 28, 2023 at 1:30 pm EST - 2:30 pm EST

Dec 2023

Balancing Work & Cancer Webinar: Marketing Yourself: Job Search and Beyond – December 6, 2023 at 6:00 pm EST - 7:00 pm EST

Jun 2024

Fibrolamellar Patient & Research Summit 2024 – June 9, 2024 - June 11, 2024 at 5:00 pm EDT - 4:30 pm EDT

Sep 2024

2024 Patient & Family Gathering – September 13, 2024 - September 15, 2024 at 3:00 pm EDT - 12:00 pm EDT

Other important events for the fibrolamellar community held throughout the year include:

Stone Point Capital Golf Outing – Since 2009 Stone Point Capital’s annual charity golf tournament has dedicated the proceeds to FCF.  This is the largest source of funding at the Foundation.

NYC Marathon – For many of the years since the founding of FCF there have been runners in the New York City Marathon raising money for fibrolamellar live cancer. FCF runners are with Fred’s Team from Memorial Sloan-Kettering (MSKCC).  Fred Lebow was the co-founder of the NYC Marathon in 1970.  In 1990 Fred was diagnosed with brain cancer.  He was treated at MSK and jogged down the hospital hallways during his recovery. He ran the marathon for the last time in 1992 when his cancer was in remission finishing in 5 hours and 32 minutes.  Fred died in 1994.  Although part of Fred’s Team, all funds raised by FCF runners go directly to the Fibrolamellar Research Fund set up at MSKCC and are used only for fibrolamellar research.

Cycle for Survival happens each year in locations around the U.S.A. including  Boston, Chicago, Connecticut, Long Island, Los Angeles, Miami, New York City, San Francisco, New Jersey, and Washington, D.C. If you live anywhere near one of these places and want to raise money for FCF while getting exercise at the same time, please check out Cycle for Survival and then contact Lynn to let her know your plans.  Cycle for Survival is a Memorial Sloan-Kettering Cancer Center fundraiser for rare cancers but riders can designate the specific research they want funded through the event.

Free Fall to Fight Cancer – in honor of Zach Grullon. This amazing sky diving event, held in coordination with the US Army Golden Knights, honors Zach’s life has been held since 2012 with almost $70,000 raised in total.

Fibrolamellar Calendar – For many years there has been a calendar featuring fibrolamellar patients on their birthday months. The design, production and sales of the calendar was conceived and coordinated by Gail Trecosta, parent of patient Matthew (1999-2014.) The Foundation receives a portion of the sales from this calendar each year.

Cheers To Jay and Jump for Jay – The Alexander family has held events each year honoring their son Jay since his passing in 2011. Cheers To Jay was a fundraising event at a local bar. A Jumping for Jay skydiving event happens almost annually, and Jay’s sister ran in the NYC marathon.  The total from these events is well over $100,000! Thank you Alexanders for all you do for FCF!

AmazonSmile is a simple and automatic way for you to support FCF when you shop on Amazon, at no cost to you. has the same low prices, vast selection and convenient shopping experience as, with the added bonus that Amazon will donate a portion of the purchase price to your favorite charitable organization. Just choose FCF as your permanent charity of choice and donations will be automatic.

The Patient & Family Gathering is a key event on the Foundation calendar. For several years this has been held in Stowe, VT at no cost to patients and families. It is a time for bonding and exchanging advice and information. It fulfills the Foundation’s mission to connect and support the fibrolamellar community of patients and their families.

Unfortunately, the September 2020 event had to be cancelled because of the COVID-19 pandemic and a “Virtual Fall Gathering” was held in its place. On September 17 – 19, 2021, we gathered in-person again in Stowe. This years event is scheduled for September 23 – 25, 2022. Please see the calendar for more information or to register!