GREENWICH, CT – (Sept. 30, 2020) – Despite how it sounds, a rare cancer diagnosis is not uncommon. In fact, each year when approximately 1.7 million people in the U.S. are diagnosed with cancer, more than 25% of those people will hear the words that they have been diagnosed with a rare cancer.
What is uncommon about rare cancers is a specific treatment …
GREENWICH, CT – (Sept. 25, 2020) – The Fibrolamellar Cancer Foundation is leading the way to spread the word that September 30th is designated as National Rare Cancer Awareness Day. Each year, approximately 1.7 million people in the U.S. are diagnosed with cancer. Of those, more than 25% (or 550,000+) are considered rare cancers.
GREENWICH, CT – (February 29, 2020) – Leap Day. The rarest day on the calendar and the most appropriate day to be declared as National Rare Disease Awareness Day. This is the day, Mark A. Carles, 25, of Staten Island, NY, steps forward to spread the word of awareness to everyone. Carles was diagnosed with Fibrolamellar, an aggressive liver cancer that mostly strikes teens and young adults.
GREENWICH, CT – (Feb. 4, 2020) – The Chan Zuckerberg Initiative (CZI) announced that the Fibrolamellar Cancer Foundation (FCF) is among a select group of patient-led rare disease organizations, including rare cancer foundations, to receive the first CZI Rare As One Network grant.
GREENWICH, CT – (Sept 30, 2019) – October 1st has been designated as Rare Cancer Day. The National Organization for Rare Disorders (NORD)®, spearheaded by its Rare Cancer Coalition, officially tagged October 1st as #RareCancerDay in order to bring attention to the fact that 25% of all cancer diagnosis are considered rare and they are grossly under-researched.
GREENWICH, CT – (November 22, 2017) – #GivingTuesday, a global day of giving, arrives just in time to help rare cancers, a desperately underfunded nonprofit category, that has real potential to save lives. At a global summit held earlier this month by the Fibrolamellar Cancer Foundation (FCF), an organization supporting research for a rare form of liver cancer, over a dozen prestigious research institutions …
GREENWICH, CT – (October 12, 2017) – While October is well known as the “pink” breast cancer awareness month, the Fibrolamellar Cancer Foundation (FCF) reminds the world to think “green” as October is also Liver Cancer Awareness Month …
GREENWICH, CT – (February 28, 2017) – Fibrolamellar. You have probably never heard of it, but it is a fatal liver cancer that strikes teens and young adults. You also most likely never heard of Niemann-Pick Type C disease (NPC) a debilitating and fatal genetic metabolic disorder …
NEW YORK CITY and GREENWICH, CT – (December 6, 2016) —The Cancer Research Institute (CRI), a nonprofit organization dedicated to funding cancer immunotherapy research for all types of cancer, and the Fibrolamellar Cancer Foundation (FCF), a nonprofit organization devoted to funding research in a rare but deadly form of liver cancer called fibrolamellar hepatocellular carcinoma (FHC) …