Rare cancer isn’t uncommon: Courtney’s story

The FIbrolamellar Cancer Foundation (FCF) kicks off Rare Cancer Day and National Liver Cancer Awareness month with a story featuring fibro fighter Courtney Homer. Courtney, 27, from Glendale, Arizona, was diagnosed with fibrolamellar in 2014. She taped the following video segment to share her journey since her diagnosis in 2014 when she was only 21.  Courtney’s story illustrates some of the difficulties in establishing treatment protocols for rare cancers, especially for this aggressive adolescent/young adult (AYA) liver cancer which primarily strikes individuals between 12 and 34 years old.

While Sept 30 is #RareCancerDay, October 1st marks the beginning of Liver Cancer Awareness Month. The hope is that increasing attention on rare cancers and liver cancers will raise the interest of researchers and funders in diseases like fibrolamellar and therefore accelerate the development of new and effective treatments.

Click here to read the entire press release.