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Fibrolamellar Cancer Foundation
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    • What is Fibrolamellar?
    • Fibrolamellar FAQ’s
    • Faces of Fibrolamellar
    • A Mother’s Story
    • Newly Diagnosed
  • Treatments
    • Introduction
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    • Targeted Therapy
    • Immunotherapy
    • Interventional Radiology
    • Radiation
    • Palliative Care
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    • Funded Projects
    • Total Funding and Impact
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    • Connect with Other Patients
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Home » Resources » Natural History Study of Rare Solid Tumors

The Natural History Study of Rare Solid Tumors, currently underway at the National Cancer Institute (NCI), is enrolling patients to better understand how rare solid tumors develop and grow. Natural history studies like this will help researchers learn more about fibrolamellar carcinoma (FLC) and other rare cancers and help shape the design and development of clinical trials to test new treatment options.

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Patient participation opportunities

Upcoming FCF-sponsored events

Fibrolamellar Scientific Summit 2025
June 9, 2025 - June 11, 2025

Complete calendar of events

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9:00 AM - FDA Rare Disease Day 2023
5:00 PM - Mental Health After Treatment - 4 part online discussion series
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9:00 AM - Rare Disease Day at NIH
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6:00 PM - Balancing Work & Cancer: Career Change Webinar
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9:00 AM - 10th Annual Midwest Conference on Work & Cancer
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FDA Rare Disease Day 2023
27 Feb
February 27, 2023    
9:00 am EST - 4:45 pm EST
  • Other partner-sponsored event
To mark the global observance of Rare Disease Day, FDA will host a virtual public meeting that will be live-streamed on February 27, 2023 from [...]
More Info
Mental Health After Treatment - 4 part online discussion series
27 Feb
February 27, 2023    
5:00 pm EST - 6:30 pm EST
Stupid Cancer Discussion Series: Mental Health After Treatment
  • Other partner-sponsored event
Come join this online discussion series sponsored by Stupid Cancer.   For many in the AYA community, the time after treatment is the most challenging. This [...]
More Info
Rare Disease Day at NIH
28 Feb
February 28, 2023    
9:00 am EST - 5:00 pm EST
  • Other partner-sponsored event
Rare Disease Day takes place worldwide, typically on the last day of February each year, to raise awareness among policymakers and the public about rare [...]
More Info
Balancing Work & Cancer: Career Change Webinar
01 Mar
March 1, 2023    
6:00 pm EST - 7:00 pm EST
Cancer + Careers Balancing Work & Cancer Webinar Series
  • Other partner-sponsored event
  This webinar is sponsored by Cancer + Careers, an organization that helps people with cancer thrive in their workplace by providing expert advice, interactive [...]
More Info
10th Annual Midwest Conference on Work & Cancer
24 Mar
March 24, 2023    
9:00 am CDT - 4:00 pm CDT
  • Other partner-sponsored event
This free, daylong event sponsored by Cancer & Careers will explore the complexities of balancing treatment and recovery with employment. The event is open to [...]
More Info
Events on February 27, 2023
27 Feb
FDA Rare Disease Day 2023
27 Feb 23
27 Feb
Mental Health After Treatment - 4 part online discussion series
27 Feb 23
Events on February 28, 2023
28 Feb
Rare Disease Day at NIH
28 Feb 23
Events on March 1, 2023
01 Mar
Balancing Work & Cancer: Career Change Webinar
1 Mar 23
Events on March 24, 2023
24 Mar
10th Annual Midwest Conference on Work & Cancer
24 Mar 23

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