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Fibrolamellar Cancer Foundation
  • About Fibro
    • What is Fibrolamellar?
    • Fibrolamellar FAQ’s
    • Faces of Fibrolamellar
    • A Mother’s Story
    • Newly Diagnosed
  • Treatments
    • Introduction
    • Surgery
    • Chemotherapy
    • Targeted Therapy
    • Immunotherapy
    • Interventional Radiology
    • Radiation
    • Palliative Care
  • Research
    • Publication Library
    • Research Perspectives
    • Research Overview
    • FCF Funding Priorities
    • Funded Projects
    • Total Funding and Impact
  • Resources & Events
    • Connect with Other Patients
    • Events Calendar
    • Find A Doctor
    • Clinical Trial Patient Assistance Program
    • Helpful Resources
    • Glossary of terms
  • Clinical Trials
  • Join the Fight
    • Donate Tumor Tissue
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Home » Resources » Natural History Study of Rare Solid Tumors

The Natural History Study of Rare Solid Tumors, currently underway at the National Cancer Institute (NCI), is enrolling patients to better understand how rare solid tumors develop and grow. Natural history studies like this will help researchers learn more about fibrolamellar carcinoma (FLC) and other rare cancers and help shape the design and development of clinical trials to test new treatment options.

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Patient participation opportunities

Upcoming FCF-sponsored events

Fibrolamellar Scientific Summit 2025
June 9, 2025 - June 11, 2025

Complete calendar of events

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5:00 PM - Cactus Cancer Society: Journaling workshop for AYA patients, caregivers
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1:00 PM - Triage Cancer: Engaging in Self-Advocacy
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Cactus Cancer Society: Journaling workshop for AYA patients, caregivers
29 Jun
June 29, 2023    
5:00 pm EDT - 5:30 pm EDT
30 Minute Tune-up journaling session for AYA patients, survivors and caregivers
  • Other partner-sponsored event
  Join Jean Rowe, LCSW, Certified Journal Therapist, for a weekly journaling program. This popular 30-minute journaling workshop is sponsored by Cactus Cancer Society, an [...]
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Triage Cancer: Engaging in Self-Advocacy
26 Jul
July 26, 2023    
1:00 pm EDT - 2:30 pm EDT
  • Other partner-sponsored event
  Please join Triage Cancer for their free educational webinar discussing issues and approaches towards self-advocacy. This webinar will empower self-advocates! Learn practical tips for [...]
More Info
Events on June 29, 2023
29 Jun
Cactus Cancer Society: Journaling workshop for AYA patients, caregivers
29 Jun 23
Events on July 26, 2023
26 Jul
Triage Cancer: Engaging in Self-Advocacy
26 Jul 23

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