Cleaning For A Reason connects households battling cancer with local companies that can clean their homes for free. When cancer makes life at home difficult, their network of residential cleaners, cleaning industry volunteers and community volunteers come together to support cancer patients and their families. They serve all 50 states and Canada.

The Social Security Administration has designated fibrolamellar as one of the diseases which may be fast tracked to get disability designation. The official announcement details from August 21, 2018 are included here.

Healthcare Hospitality Network is a nationwide professional association of nearly 200 unique, nonprofit organizations that provide lodging and support services to patients, families and their loved ones who are receiving medical treatment far from their home communities. Hospital hospitality houses (HHH) provide free or significantly reduced cost lodging to patients and their families while receiving medical care away from their home communities. Unlike a hotel, HHHs provide opportunities for those going through similar stressful situations to come together as a community where they can support one another. HHHs have shared kitchens, common living areas and private bedrooms just like a home, creating a warm and comfortable place far from home.