Spearheaded by the National Organization of Rare Disorders’ (NORD) Rare Cancer Coalition, Rare Cancer Day is observed on September 30 each year to highlight the challenges facing rare cancer patients and the need for greater research funding. Rare cancers are those affecting fewer than 40,000 people per year in the US. Because of their low prevalence, they can be extremely challenging to diagnose and less likely to attract the research funding necessary to understand and treat them.

Rare Cancer Day is an initiative that brings much-needed attention to a group of diseases that are often overshadowed by more prevalent types. By raising awareness, advocating for research and funding, providing support, encouraging early detection, and reducing stigma, this day plays a crucial role in improving the lives of those affected by rare cancers.

The Fibrolamellar Cancer Foundation and other organizations use this day to shine a spotlight on rare cancers and unify all voices in hope of a cure. Our belief is that increased media and public attention on rare cancers will motivate research funding and therefore accelerate the development of new, effective treatments for these diseases.

Together, we can impact the lives of those grappling with all rare cancers, including fibrolamellar carcinoma.