Our 8th annual patient and family gathering has gone virtual! Whether it’s your first year or eighth year attending one of our get-togethers, these events are for you. Click on any of the session dates below to get more details about the agenda and register for the event. For events that already occurred, you can view a video of the proceedings. We look forward to seeing you on-line!
Below are the details for each of the four sessions:
September 17: What’s the Foundation Been up To? Scientific Research Updates and More
The Fibrolamellar Cancer Foundation has had a busy year! Listen to an update on our recent efforts and critical scientific research happening in our community.
Audience: Patients and caregivers
Agenda for the discussion:
| Introduction and Welcome | 7:00 – 7:15 pm |
| Update on the Foundation | 7:15 – 7:25 pm |
| Scientific Research Update | 7:25 – 7:40 pm |
| Bio Banking Overview | 7:40 – 7:50 pm |
| Q&A session | 7:50 – 8:00 pm |
September 24: Patients Over 18: Grab Your Favorite Drink or Snack and Let’s Get Inspired
This “happy hour” for patients featuring guest speaker Matthew Zachary offered connection, inspiration, education – a mix of everything!
Audience: Patients
Agenda for the discussion:
| Introduction and Welcome | 6:00 – 6:15 pm |
| Guest Speaker – Matthew Zachary, young adult cancer survivor, founder of OffScrip Media and founder of Stupid Cancer | 6:15 – 6:25 pm |
| Interview of Matthew by Mandy McGowan, a FLC patient | 6:25 – 6:45 pm |
| Gathered Patients | 6:45 – ? |
October 8: Caring for Your Loved One and Yourself
Calling all caregivers! This informative and interactive Zoom session for caregivers was led and moderated by CancerCare’s Women & Children’s Program Manager Lauren Chatalian, LMSW.
Time: 7:00 – 8:30 pm EST
Audience: Current and former fibrolamellar caregivers
Agenda for the discussion:
| Introduction and Welcome | 7:00 – 7:10 pm |
| Guest Speaker – Lauren Chatalian | 7:10 – 7:25 pm |
| Q&A and Group Questions of Lauren and a Caregiver Panel | 7:25 – 7:55 pm |
| Gathered Caregivers | 7:55 – 8:30 pm |
October 22: Patients Under 18: Tonight It’s All about Fun and Games
This exciting evening was designed to let teen-aged patients meet and interact with fellow fighters, learn and have some fun. It featured guest speakers from Teen Cancer America including Child Life and AYA Specialist Kara Noskoff and Patient Ambassador Alec Kupelian who also hosted a fun interactive game for the group.
Time: 7:00 – 8:15 pm EST
Audience: Patients and their parents
Agenda for the discussion:
| Introduction and Welcome | 7:00 – 7:10 pm |
| Guest Speakers – Kara Noskoff and Alec Kupelian from Teen Cancer America | 7:10 – 7:40 pm |
| Interactive Game | 7:40 – 8:10 pm |
| Discussion and Conclusion | 8:10 – 8:15 pm |