As summer heats up, so does FCF’s commitment to fibrolamellar research. We’ve launched our 2025 Summer Appeal and invite you to join our effort to develop more effective treatments for fibrolamellar patients. The Fibrolamellar Cancer Foundation (FCF) is now supporting four groundbreaking clinical trials, an extraordinary milestone for our rare disease community. One of these trials has …
Registration is now open for the Patient & Family Gathering to be held on September 12 – 14, 2025, at the Lake Mansfield Trout Club in Stowe, Vermont. This unique event brings together patients, families and caregivers dealing with fibrolamellar, helping them build connections and friendships with others facing similar challenges. Please click here to …
From June 9–11, 2025, a gathering of prominent cancer researchers took place in Greenwich, Connecticut. The event focused on exchanging research findings, fostering collaboration, and strategizing advancements in the treatment of fibrolamellar carcinoma (FLC). This marked the sixth international summit of key FLC researchers hosted by the Fibrolamellar Cancer Foundation (FCF). The summit’s opening keynote …
On June 9 – 11, 2025, FCF hosted its sixth Fibrolamellar Scientific Summit. The goal of this meeting was to bring together the fibrolamellar research community to share knowledge and to collaborate in the search for a cure. The opening session of the conference featured a panel discussion highlighting the latest advancements in targeted immunotherapy …
FCF is pleased to announce that it has awarded a grant to Aleksander Skardal, PhD, of Ohio State University to develop new models of fibrolamellar carcinoma (FLC). A major challenge to researching FLC is the scarcity of lab models that accurately mimic how this cancer behaves in the human body. To address this, the team …
The FCF is pleased to announce the funding of a study led by Dr. Sean Ronnekleiv-Kelly of the University of Wisconsin-Madison. This research will explore a key protein, SLC16A14, that is involved in the growth and survival of fibrolamellar cancer (FLC) cells using a new mouse model that the team has developed. Evidence suggests that …
A new clinical trial for fibrolamellar patients is now enrolling patients! This phase 1/2 study, Testing the Addition of an Anti-cancer Drug, DT2216, to the Usual Chemotherapy Treatment for Relapsed or Refractory Solid Tumors and Fibrolamellar Carcinoma, will test the safety, side effects and best dose of DT2216 in combination with the chemotherapy agent, irinotecan. …
From June 9 – 11, FCF is hosting its sixth Fibrolamellar Scientific Summit. The goal of this meeting is to bring together the fibrolamellar research community to share research knowledge and to collaborate in the search for a cure. To encourage the sharing of unpublished information, the scientific discussions in the main session will be …
Congratulations to Marina Baretti, MD of Johns Hopkins University! On May 30, she was recognized with a Career Development Award (CDA) at the 2025 American Society of Clinical Oncology (ASCO) Annual Meeting. This highly prestigious award provides three years of research funding to clinical investigators to establish an independent clinical cancer research program. These awards …