FCF is pleased to announce its partnership with Dialectic Therapeutics to supply an experimental drug, DT2216, for a planned clinical trial for fibrolamellar patients. Under the agreement, FCF will fund the production of the DT2216 necessary to support the trial. The Foundation’s funding of the manufacturing costs of the drug was crucial to ensure the …
Congratulations to Dr. Juliane Walz of the University of Tübingen who was recently honored at überDACHt – Roche Science & Innovation Summit with the “Best Overall Award” for the upcoming fibrolamellar clinical trial, FusionVac_22_02. The event in Basel, Switzerland on March 21, 2025, brought together researchers from Germany, Austria and Switzerland to discuss innovations in …
FCF is pleased to announce that we have awarded Yasemin Sancak, PhD, of the University of Washington a grant to study the metabolic implications and targetability of mitochondrial calcium signaling in FLC. Dr. Sancak’s lab studies mitochondria, the “powerhouses of the cell” that produce most of a cell’s energy. Dysfunctional mitochondria are linked to various …
February 28th is Rare Disease Day — a worldwide event hoping to improve the lives of the 300 million people worldwide who are living with rare diseases, their families, and their caregivers. Rare Disease Day was launched in 2008 by EURORDIS – Rare Diseases Europe and takes place on the last day of February each year in more …
FCF is pleased to announce that it has awarded a grant to Praveen Sethupathy, PhD, of Cornell University to outline the “spatial transcriptomics” of FLC. Dr. Sethupathy’s lab has been a leader in functional genomic studies, especially for liver and gastro-intestinal cancers. They also have extensive experience in FLC research. His group has focused on …
Major medical breakthroughs can result from translating basic scientific research into practical patient treatments. But how does that happen? …
As a nonprofit, FCF is fueled by donors like you. By supporting FCF this Giving Tuesday, you can play a crucial role in funding the groundbreaking research necessary to find improved treatment options for fibrolamellar cancer patients. In the last 2 years alone, FCF has approved $9.8 million in new FLC research and clinical trials …
Thanks to the efforts of FCF’s Patient & Caregiver Advisory Board, we will be producing fibrolamellar calendars again in 2025!
Deciding to participate in a clinical trial to access a new innovative treatment is an important decision for patients and their families. In a rare disease like FLC, trials specifically designed for the disease are typically offered at very few locations. Consequently, patients enrolling in clinical studies may have to spend many days or weeks …