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In a recent study funded by FCF, researchers at the University of Washington, Fred Hutchinson Cancer Center, and Cornell University shed important light on why immunotherapy has struggled to work in fibrolamellar carcinoma (FLC). Led by Dr. Venu G. Pillarisetty and Dr. Praveen Sethupathy, a collaborative, multidisciplinary team set out to understand why treatments like …
A landmark, evidence‑based clinical guideline for the diagnosis and treatment of fibrolamellar carcinoma (FLC) has been released online ahead of publication in the journal Hepatology. Developed by a panel of 20 expert physicians from 15 leading cancer centers and supported by the Fibrolamellar Cancer Foundation, the guideline affirms that FLC is a biologically distinct cancer …
We are excited to announce the publication of a landmark paper in Nature Medicine highlighting a major advance in targeted immunotherapy for fibrolamellar carcinoma (FLC). The article, A Therapeutic Peptide Vaccine for Fibrolamellar Hepatocellular Carcinoma: A Phase 1 Trial, describes a collaborative effort by researchers at the Johns Hopkins University School of Medicine (Baltimore, MD) …
Today, on World Cancer Research Day, we join the global cancer community in recognizing the power of research to transform lives. This year’s theme, “Cancer Research Needs Us All,” resonates with our mission at the Fibrolamellar Cancer Foundation (FCF)—where patients, families, researchers, and supporters unite to accelerate progress against fibrolamellar carcinoma (FLC), a rare and …
As summer heats up, so does FCF’s commitment to fibrolamellar research. We’ve launched our 2025 Summer Appeal and invite you to join our effort to develop more effective treatments for fibrolamellar patients. The Fibrolamellar Cancer Foundation (FCF) is now supporting four groundbreaking clinical trials, an extraordinary milestone for our rare disease community. One of these trials has …
Registration is now open for the Patient & Family Gathering to be held on September 12 – 14, 2025, at the Lake Mansfield Trout Club in Stowe, Vermont. This unique event brings together patients, families and caregivers dealing with fibrolamellar, helping them build connections and friendships with others facing similar challenges. Please click here to …
From June 9–11, 2025, a gathering of prominent cancer researchers took place in Greenwich, Connecticut. The event focused on exchanging research findings, fostering collaboration, and strategizing advancements in the treatment of fibrolamellar carcinoma (FLC). This marked the sixth international summit of key FLC researchers hosted by the Fibrolamellar Cancer Foundation (FCF). The summit’s opening keynote …
On June 9 – 11, 2025, FCF hosted its sixth Fibrolamellar Scientific Summit. The goal of this meeting was to bring together the fibrolamellar research community to share knowledge and to collaborate in the search for a cure. The opening session of the conference featured a panel discussion highlighting the latest advancements in targeted immunotherapy …
FCF is pleased to announce that it has awarded a grant to Aleksander Skardal, PhD, of Ohio State University to develop new models of fibrolamellar carcinoma (FLC). A major challenge to researching FLC is the scarcity of lab models that accurately mimic how this cancer behaves in the human body. To address this, the team …