FCF Press Release on Rare Disease Day Tuesday October 1, 2019 is Rare Cancer Day. The event this year is especially important because at the Fibrolamellar Cancer Foundation (FCF) we are celebrating ten years of bringing awareness to this disease. We are proud to have contributed nearly $8 million to researching cures and treatments for …
Nearly 80 members of the fibrolamellar scientific community – USA and international- gathered in Greenwich, CT in early November to share their research, discoveries and hopes for curative therapies. Importantly those attending embrace collaboration and data sharing – even if their research is not published …
A successful liver transplant can be life-saving for patients facing liver failure and there are thousands of people currently waiting to receive transplants. Since the liver is the only organ that can regenerate itself and grow from a small piece back to its full size, a living donor can volunteer to divide their healthy liver …
Nancy A. Berryhill, Acting Commissioner of Social Security, announced five new Compassionate Allowance conditions: Fibrolamellar Cancer, Megacystis Microcolon Intestinal Hypoperistalsis Syndrome (MMIHS), Megalencephaly Capillary Malformation Syndrome (MCAP), Superficial Siderosis of the Central Nervous System, and …
The Fibrolamellar Research Collaboration Travel Fund has officially launched, following the second international fibrolamellar (FLC) research summit hosted by the FCF. The summit fostered an amazing amount of data sharing and collaborative brainstorming amongst some of the world’s greatest researchers…
In this recently produced CURE Connections® video, Philippa Cheetham, MD, interviews key leaders of the GI Cancers Alliance, a coalition of organizations that have joined together to raise awareness, provide education, and accelerate the research and development of treatments in the area of gastrointestinal cancers. These leaders, which include the President of the Fibrolamellar Cancer …