As we stand on the cusp of a brand new year, the Fibrolamellar Cancer Foundation extends warm wishes to the entire fibrolamellar community. May the coming year bring: FCF is committed to work collaboratively to build a brighter future for those touched by this disease. Please join us in the effort to reduce the fear …
Each year, the Tuesday after Thanksgiving celebrates giving as a way to transform the world. Giving Tuesday was created in 2012 as a day that encourages people to “do good”. Over the past 11 years, this idea has grown into a global movement that inspires hundreds of millions of people to give, collaborate, and celebrate generosity …
FCF is please to announce that it has funded a new study directed by Roshni Dasgupta, MD of the Cincinnati Children’s Hospital Medical Center (CCHMC). Dr. Dasgupta is a leader in surgical oncology and the chair of the Pediatric Surgical Oncology Research Collaborative (PSORC). PSORC includes 41 member institutions and has a mission “to improve …
This week, a new clinical trial of a peptide vaccine treated its first patient in Tübingen, Germany. The trial, named FusionVAC22_01: Fusion Transcript-based Peptide Vaccine Combined With Immune Checkpoint Inhibition is expected to enroll 20 patients with fibrolamellar carcinoma or other cancers carrying the DNAJB1-PRKACA fusion transcript. Study goals This phase I study will examine …
Thanks to the efforts of FCF’s Patient & Caregiver Advisory Board, we will be producing fibrolamellar calendars in 2024!
FCF has awarded a grant for additional studies to be conducted by John Scott, PhD of the University of Washington in Seattle. As the Chair of the Department of Pharmacology, Dr. Scott has been a key leader of a multi-disciplinary team working on FLC at the University of Washington and the Fred Hutchinson Cancer Center …
A heartfelt thank you goes out to Stone Point Capital, as well as the sponsors and participants in the 2023 Stone Point Capital Charity Golf Tournament. Since 2009 Stone Point Capital has dedicated the proceeds from its annual charity event to FCF. This years event, held in Connecticut on October 2nd, raised a record amount …
October is Liver Cancer Awareness Month, a time to show support for those who have heard the terrifying words – “you have liver cancer”. It is also a vital opportunity raise awareness and funds to improve the detection and treatment of these diseases. There are several types of primary liver cancers. Hepatocellular carcinoma (HCC) and …
Spearheaded by the National Organization of Rare Disorders’ (NORD) Rare Cancer Coalition, Rare Cancer Day is observed on September 30 each year to highlight the challenges facing rare cancer patients and the need for greater research funding. Rare cancers are those affecting fewer than 40,000 people per year in the US. Because of their low …