Many thanks to Destiny and Bill Haggett, Chansen and the rest of their family for helping to spread the word about the importance of rare disease advocacy on this Rare Cancer Day. Destiny was instrumental in getting Coral Springs and Coconut Creek, Florida to proclaim Sept. 30 as “Rare Cancer Awareness Day” in those cities. …
Thanks to the efforts of of Kielan Wilson-Premo and the rest of FCF’s Patient & Caregiver Advisory Board, we are bringing back …
John Hopper, who has led FCF for the past eight years, has informed us that he plans to retire. Until his retirement, John’s efforts will help accelerate FLC research by identifying potential new funding sources. We are very appreciative of all John has done and are pleased for the support he will provide the Foundation …
The Fibrolamellar Cancer Foundation (FCF) kicks off Rare Cancer Day with a special video created by the fibrolamellar community …
Because of the urgent need for widely available research models of fibrolamellar carcinoma (FLC) to improve our understanding …
FCF is pleased to announce that two of its research partners – Mark Yarchoan, MD of the Johns Hopkins Kimmel Cancer Center and Paul Thomas, PhD of St. Jude Children’s Medical Center have received significant funding from the National Cancer Institute (NCI) for a collaborative fibrolamellar research project. Their initiative “Neoantigen-specific T cell responses for …
Please join us for our new webinar series focusing on the use of precision medicine techniques in rare cancers like fibrolamellar. Traditionally …
The Department of Defense (DOD) is seeking patients and caregivers to act as consumer grant reviewers for two large cancer research …
Many thanks to Chansen Savakinus of Coral Springs, Florida for his help in spreading the word about Rare Disease Day, celebrated on February 28th each year. The day brings needed attention to diseases that are under-researched and often overlooked by health policy decision makers and the medical community. By publicizing rare disease patients’ experiences, Rare …