Kurt Losert 
FCF is pleased to announce a new one-year grant award to Mark Yarchoan of Johns Hopkins University in Baltimore, MD to support the development of a protocol for a potential clinical trial. In 2020, the Johns Hopkins team began a phase I clinical trial of an experimental vaccine containing a peptide (small segment of a …
FCF is pleased to announce that Dr. Nabeel Bardeesy of the Massachusetts General Hospital in Boston, MA has been awarded a new two-year grant entitled “Elucidation of nuclear-mitochondrial signaling by DNAJ-PKAc to define targeted vulnerabilities in FLC”. In fibrolamellar carcinoma (FLC) the development and growth of tumor cells is driven by the presence of the …
Each year on GivingTuesday, millions of people come together to celebrate generosity, share kindness and donate to causes they care about. A celebration of all types of generosity, GivingTuesday inspires people around the world to give gifts of money, time, skills, advocacy, and more. Everyone has something to give and every act of generosity counts. …
Kielan Wilson-Premo, a member of FCF’s Patient & Caregiver Advisory Board, recently shared his perspectives on mental health issues for patients facing a rare disease diagnosis and treatment. On October 17, Kielan served as a panelist for a discussion on “Mental Health and Rare Cancers” at the National Organization for Rare Disorders’ (NORD) annual Rare …
We’re excited to share that FCF has earned a 2022 Platinum Seal of Transparency with Candid. The Platinum Seal of Transparency is the highest level of recognition offered by Candid and GuideStar, the world’s largest source of nonprofit information. To receive the 2022 Platinum Seal, FCF shared important information with Candid that is included in …
Many thanks to Destiny and Bill Haggett, Chansen and the rest of their family for helping to spread the word about the importance of rare disease advocacy on this Rare Cancer Day. Destiny was instrumental in getting Coral Springs and Coconut Creek, Florida to proclaim Sept. 30 as “Rare Cancer Awareness Day” in those cities. …
Thanks to the efforts of of Kielan Wilson-Premo and the rest of FCF’s Patient & Caregiver Advisory Board, we are bringing back …
John Hopper, who has led FCF for the past eight years, has informed us that he plans to retire. Until his retirement, John’s efforts will help accelerate FLC research by identifying potential new funding sources. We are very appreciative of all John has done and are pleased for the support he will provide the Foundation …
The Fibrolamellar Cancer Foundation (FCF) kicks off Rare Cancer Day with a special video created by the fibrolamellar community …