Faces of Fibrolamellar

The purpose of this section is to share the journeys of patients and families affected by fibrolamellar.  These stories are written by patients and families in their own words. Click on each thumbnail photo for that patient’s story.

Some of these families are willing to speak directly with other patients and families. Contact Lynn O’Malley at [email protected] if there is a specific “Face of Fibro” with whom you would like to be in touch.

Gail and Matt

Pictured above: Gail and her son Matthew

Please click here to share your story.

Current Patients



There are other NED fibrolamellar patients who have not yet shared their story for publication on this website.


In Memoriam