The purpose of this section is to share the journeys of patients and families affected by fibrolamellar. These stories are written by patients and families in their own words. Click on each thumbnail photo for that patient’s story.
Some of these families are willing to speak directly with other patients and families. Contact Lynn O’Malley at [email protected] if there is a specific “Face of Fibro” with whom you would like to be in touch.
Pictured above: Gail and her son Matthew
Please click here to share your story.
There are other NED fibrolamellar patients who have not yet shared their story for publication on this website.