Faces of Fibrolamellar

The purpose of this section is to share the journeys of patients and families affected by fibrolamellar.  These stories are written by patients and families in their own words. Click on each thumbnail photo for that patient’s story.

Some of these families are willing to speak directly with other patients and families. Contact Lynn O’Malley at [email protected] if there is a specific “Face of Fibro” with whom you would like to be in touch.

Photo below shows “fibro fighters” taken at one of the Foundation’s patient gatherings at the Lake Mansfield Trout Club, Stowe, VT.

Current Patients


There are other NED fibrolamellar patients who have not yet shared their story for publication on this website.


If you would be willing to share your story, click here.


In Memoriam