Fibrolamellar Patient & Research Summit – Patient Survey

Thank you for agreeing to attend FCF’s first ever Patient & Research Summit! We want this to be a collaborative working session, where fibrolamellar patients, caregivers, clinicians and researchers discuss important research topics, and identify opportunities to improve and accelerate fibrolamellar research activities.

To help make the event as productive as possible, please take a few minutes to complete the following survey. The survey has several objectives:

  • Providing basic background information about attendees that will be included in the event program
  • Identifying specific questions the group would like addressed during the meeting sessions
  • Assessing participation levels in research initiatives and barriers to broader participation
  • Understanding potential ideas for improvement.

We’ll summarize and share the results with everyone at the meeting. Aside from the information to be included in the event program, your individual responses will remain anonymous.